I have had ME I think as far as I remember but officially diagnosed in my early 20s. Highly functional, able to do a lot but crashed every time and needing lots of sleep to recover. This was my life until I was 42 when I pushed myself way too hard and was 10% functioning. Able to just take care of myself. Showers were the hardest- once a week was all I could manage and I remember looking down at my shaky legs and almost passing out from it. Gradually I got a little better by doing nothing different. Able to go for slow walks for up to 15 min a day. This took 1 1/2 years. Finally I started looking at my diet and started eating only organic and grass-fed food and literally within two weeks of that I was walking fast for 30 minutes everyday and highly functional for 5-6 hours a day. Felt pretty great! Lasted 3 years until this January pushed too hard again now I’m bed bound but able to do cooking and dishes, self-care and that’s it even though I eat just as healthy. I’ve never tried any supplements just food because I don’t tolerate lots of foods so I don’t see why I would tolerate supplements.
