Is there an online database of ME patients?

[Aspie Lymie]

Hello,

Is there an online database of ME patients? I'm searching for a web site where patients could give all their information in terms of symptoms, treatments tested, lab tests, anonymous personal details, etc...
This web site could be helpful to draw conclusions, to create stats available to anyone for free, etc... Is there such a web site out there?
Thank you.

 

[Jani]

e. g. for ME patients: https://whatcures.me-aktuell.de/web/en
Demo users page: https://whatcures.me-aktuell.de/web/en/user-overview/index/demo
It is Open Source: https://gitlab.com/meaktuell/whatcures

for all diseases (closed source):
e. g. https://www.patientslikeme.com/
read: https://support.patientslikeme.com/hc/en-us/articles/201245750

 

[Aspie Lymie]

Thank you