Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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For me I feel a little bit like a fraud being here because I think my ME/CFS is really a combo of:
POTS
MCAS
SJOGRENS
Huh?
POTS, MCAS, and Sjogren's are all well-known symptoms or comorbidities of ME.
These diagnoses only reinforce the diagnosis of ME, in no way could they possibly invalidate it...
One wonders if it all can be lumped into "Overactive System"
My mother was sick with a very bad cold when I was born.
And I've been pretty much broken from day 1. So..... (?)
I just read online how to fix the Overactive Immune System....problem solved.
This topic is really bothering me: that I failed to fully interview Mom. Having to be forensic about it, sucks. Piecing together the clues...I got to One Year before the unraveling proceeded.
My Mom blamed food/pediatrician/at two months start foods...as giving me all these allergies....but I want to know about her Gut.
So you want to give me that secret for how to fix an overactive immune system?
It was an antihistamine. I believe it was called Novahistine.
that sounds familiar......
I was put on actual shots at one.....I can remember being in my crib, in the carpet less, stuffed animal-less, pet-less house....suspect medical PTSD started around the age of ONe.
Covered in rashes, bathing in Aveno....or Phisohex (that other Green Bottle Stuff, nasty). Goats milk delivered to the door, absolutely awful tasting. Vaporizers. Metholatum (green bottle)
do you remember Camphophenique? Green stuff. In a bottle, Smelled intense.
I was put on phenobarbital as a 7-8 year old. My parents could not explain this when I asked as an adult.
Yes, I definitely remember the name Camphophenique but can't really remember what about it.
having hijacked Chookie's PEM thread. Sorry!
Right!for scrapes and scratches?