Is Nevada a sanctuary state for ME? And what does that mean?

[I AM]

A few patients have told me that treatment for PwME cannot be denied by insurance in Nevada. Is this true? They say Dr. Peterson got NV as a sort of sanctuary state for ME. Does anyone know more about this? It sounds too good to be true but I've been told this a couple of times now. Do we all need to move there to get the healthcare we need?

 

[Dakota15]

Can I ask where you've heard this from @I AM Phoenix ?

 

[maybe some day]

Ive never heard of this. Insurance companies still run the system. Afordable care act helps in one aspect that you cant be denied for a pre existing condition

Post some info so we can have a look

 

[I AM]

@Dakota15 I updated my intro to answer your question and provide more context. One of the PwME that told me this is in the advocacy area. So I suppose it is OK to use his name since he is in the public eye. And that would be Erik Johnson... of The Erik Johnson Effect. https://www.facebook.com/groups/eri...1546232314160913&notif_t=group_comment_follow I would hazard a guess that he is a member of this group and if he is, I hope that he responds. The other person who told this to me is a patient of Dr. Peterson.

@maybe some day this is everything that I know. I have no idea if this access would require being a patient of Peterson (I am told he is very hard to get into see) and living in NV or what??? But I had yet another insurance denial for treatment and yet another consult with a doctor who has his head up his ### in a matter of a couple of days. So I am pissed and recalling what I have heard about NV I want to investigate it further.

 

[maybe some day]

@I AM Phoenix
Thanks for the update. Peterson was at ground zero in the late 80's.

 

[Rooney]

I investigated moving there 5 years ago and learned PRIVATE insurers must cover experimental drugs for ME/CFS, Ampligen. I don't have private insurance. NV state law.

I have no knowledge of current Ampligen info. At the time, Peterson would see you if he felt he could help you after reviewing your case records. Best to call his office. Good luck.

 

[I AM]

@Rooney very interesting thank you. The Peterson patient that I spoke with believes she will get Ampligen for free. That's a $60k/yr treatment. I have no idea what insurance she has. Since I do not have private insurance, either, I suppose it is moot.