Research 1st
Severe ME, POTS & MCAS.
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- 768
Hello everyone.
After testing nearly everything under the sun for immunity that came back normal ($$$) I thought of the most basic immune supporting nutrient we all need, Vitamin C.
To my surprise, the Vitamin C came back at under 5.7 umol/L with the reference range being over 11.4 umol/L not to be deficient. To my untrained eye, this makes my result look pretty bad, or in your view is it actually bad enough to tell a doctor and see what they think?
I ask, as what is freaking me out for a long time now, is even without an active inflammatory chest which is very common as I keep getting upper respiratory tract infections and burning lungs that trigger relentless daily Asthma for weeks, is my breathing muscles feel so terribly worn out, it's like they've given up working on their own. it's scary as I keep wanting someone else to breathe for me, especially when I get infections which then really makes me almost accept I'm going to collapse out of exhaustion (breathing), but of course that's not possible without being on a ventilator in hospital.
Since I had the test result back I've tried to be proactive and started taking 2000mg (2g) of Vitamin C but I wondered if this would be enough to correct my levels rapidly? I don't eat any fruit and only drink water. I live off meat & potatoes and spinach (for iron) that have some Vitamins in, but evidently not enough.
It just goes to show if you develop MCAS/food allergies and have to radically alter your diet you can end up in trouble thinking your symptoms are 'just' ME CFS. I'm sure we've all done this with many issues we end up having, especially when out treatment is said to be CBT/GET/Antidepressants, but doesn't work as we aren't depressed and working at our full cellular potential at rest, never mind marching around whistling motivational tunes to GET.
Thank you for any ideas and input and sorry in advance if it's a tricky question.
After testing nearly everything under the sun for immunity that came back normal ($$$) I thought of the most basic immune supporting nutrient we all need, Vitamin C.
To my surprise, the Vitamin C came back at under 5.7 umol/L with the reference range being over 11.4 umol/L not to be deficient. To my untrained eye, this makes my result look pretty bad, or in your view is it actually bad enough to tell a doctor and see what they think?
I ask, as what is freaking me out for a long time now, is even without an active inflammatory chest which is very common as I keep getting upper respiratory tract infections and burning lungs that trigger relentless daily Asthma for weeks, is my breathing muscles feel so terribly worn out, it's like they've given up working on their own. it's scary as I keep wanting someone else to breathe for me, especially when I get infections which then really makes me almost accept I'm going to collapse out of exhaustion (breathing), but of course that's not possible without being on a ventilator in hospital.
Since I had the test result back I've tried to be proactive and started taking 2000mg (2g) of Vitamin C but I wondered if this would be enough to correct my levels rapidly? I don't eat any fruit and only drink water. I live off meat & potatoes and spinach (for iron) that have some Vitamins in, but evidently not enough.
It just goes to show if you develop MCAS/food allergies and have to radically alter your diet you can end up in trouble thinking your symptoms are 'just' ME CFS. I'm sure we've all done this with many issues we end up having, especially when out treatment is said to be CBT/GET/Antidepressants, but doesn't work as we aren't depressed and working at our full cellular potential at rest, never mind marching around whistling motivational tunes to GET.
Thank you for any ideas and input and sorry in advance if it's a tricky question.