supplemental medicare plans
anncavan, is there a group in your state you can call to get advice? When I went on Medicare (in my 40s, so I was not a senior either) I called an Oregon volunteer group called SHIBA (Senior Health Insurance Benefits Assistance). They were extremely helpful for me to sort through all the issues with transitioning to Medicare. For example, I thought I could just stay on as a dependent on my husband's insurance plan after he retired and was on COBRA coverage. But I would have had to pay a penalty if they had not explained to me that I had a shorter deadline for signing up for Medicare.
The point is that if you can find a California group that gives advice to seniors they also help those who go on Medicare due to disability. There's probably a completely different acronym for each state but check out whatever resources exist for seniors and they might be able to help you.
Supplemental Medicare plans vary quite a bit from state to state (and even among different counties). I happen to be on one of the Medicare Advantage plans (these might go away, but it's working for now). I believe the other supplemental plans are called Medigap plans.
Of course, there are web sites with information (
http://ssa.gov/pgm/medicare.htm and
http://www.medicare.gov/) but it can be complicated to navigate these web sites without having someone who can answer questions.
Best of luck!
PS. General comment on this thread -- Don't forget that having ME/CFS does not mean you'll never get another illness, be in an accident, have to go to the hospital, etc. Trying to guess whether it is worth it to sign up for Part D may not be possible because you can't predict what drugs you may need in the future for some non-ME/CFS illness.