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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Hi ryan7817, Hair loss isn't named in any of the diagnostic criteria for CFS, so it isn't considered by the medical profesion to be a primary symptom, however there are a number of people on this board who have it. It's complicated because there are so many factors that influnce hair loss, genitics etc, alot of medications can cause hair loss if your on any.
I don't how well you've been investigated for other possible causes of your CFS, but another thing to consider is that alot of the diseases that can be misdiagnosed as CFS cause hair loss as well as the symptoms of CFS, such as Celiacs, Hemochromatosis, Hypo and hyper thyroidism and other thyroid conditions, Addison's and other major adrenal problems, SLE (systemic lupus erythematosis) anemia etc. So if you havn't been properly investigated for these conditions, it might be worth getting it done incase somethings been missed.
All the best
Symptoms of a wheat allergy or wheat intolerance (not exhaustive by any means):
* Arthritis
* Bloated stomach
* Chest pains
* Depression or mood swings
* Diarrhea
* Eczema
* Feeling dizzy or faint
* Joint and muscle aches and pains
* Nausea or vomiting
* Palpitations
* Psoriasis
* Skin rashes
* Sneezing
* Suspected irritable bowel syndrome (IBS)/similar effects
* Swollen throat or tongue
* Tiredness and lethargy
* Unexplained cough
* Unexplained runny nose
* Watery or itchy eyes
Coeliac Disease, also called ‘gluten-sensitive enteropathy’ or ‘coeliac sprue’ is a serious and surprisingly common condition that occurs when gluten (a protein found in wheat, barley, oats and rye) reacts with the small intestine causing the immune system to attack, inflame and eventually destroy the delicate lining of the bowel thereby reducing the ability of the gut to absorb necessary nutrients from food.
It is estimated that approximately 1 in 100-300 people suffer the condition and if left untreated, as well as causing great discomfort, can cause anaemia, bone disease and even some forms of cancer. People with insulin dependent diabetes, thyroid problems and ulcerative colitis have an increased chance of developing coeliac disease and in 2004 a study carried out by Bristol University reported that as many as 1 in 100 children may have the condition. Symptoms can include irritability, tiredness, depression, anaemia, diarrhoea, bloating, bone pain, mouth ulcers or itchy skin rash (dermitiis herpetiformis) particularly around the elbows, buttocks or knees and hair loss.