• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Is it truly Borrelia?

Messages
76
Hello,

According to my test: http://autahry.eu/upload/results.pdf

Where is:
1. Mentioned bordeline Borrelia
index.php

2. Mentioned streptococcus in my nose
3. High SHBG (by zoloft probably), Bilirubin
4. Anemia
5. Bordeline testosterone around 400
6. Bordeline thyroids around FT3 around 4. Conversion of T4->T3 worsened.
7. I have leaky gut

Doctor prescribed: Minocyclin and Benemicin which are antibiotics

Do you agree? Is my problem trully Borrelia?

Thank you
 

Attachments

  • Výstřižek.PNG
    Výstřižek.PNG
    25.8 KB · Views: 118

IreneF

Senior Member
Messages
1,552
Location
San Francisco
What the test shows is that you may have been exposed to Borrelia at one time. It doesn't mean you have or ever had an active infection.

Lots of people have strep in their noses.

Personally I would avoid antibiotics unless they are clearly necessary.
 

Thinktank

Senior Member
Messages
1,640
Location
Europe
@IreneF, no that's not true in the case of lyme disease.

@pepous, Do you know which bands on the WB are positive? If it's one of the bands specific to borrelia then you better follow up with a LLMD (lyme literate doctor) as soon as possible. MInocycline is active against borrelia but is usually not a first choice treatment, especially if you had the infection for a while.
 

heapsreal

iherb 10% discount code OPA989,
Messages
10,079
Location
australia (brisbane)
You haven't mentioned your symptoms or how long you've had them.

Plus false positives are always a possibility. I was once told I had Hep C, for example.

How reliable can any testing really be. How do they get hep C wrong. Theres plenty of other examples , makes everything unpredictable , unreliable . Drs dont seem to be able to back themselves on a diagnosis using their clinical skills.
 
Messages
76
@IreneF, no that's not true in the case of lyme disease.

@pepous, Do you know which bands on the WB are positive? If it's one of the bands specific to borrelia then you better follow up with a LLMD (lyme literate doctor) as soon as possible. MInocycline is active against borrelia but is usually not a first choice treatment, especially if you had the infection for a while.



You haven't mentioned your symptoms or how long you've had them.

Plus false positives are always a possibility. I was once told I had Hep C, for example.

Sympthoms:
  • Unstable blood pressure/temperature
  • Overheating
  • Heart palp. which causes me not able to do anything
  • etc.
Whole thread here: http://forums.phoenixrising.me/index.php?threads/my-cfs-story.39326/
 
Messages
76
Hello, I got an idea today. I have small outgrow on my knee. It is sensitive to touches. In puperty i got in that knee some infection which caused me being ill for few months. Sometimes that knee i feel hurts. Couldn that be somehow connected? I maybe should go to doctor to let that outgrow cut out. What do you think?
 

heapsreal

iherb 10% discount code OPA989,
Messages
10,079
Location
australia (brisbane)
Hello, I got an idea today. I have small outgrow on my knee. It is sensitive to touches. In puperty i got in that knee some infection which caused me being ill for few months. Sometimes that knee i feel hurts. Couldn that be somehow connected? I maybe should go to doctor to let that outgrow cut out. What do you think?


Sounds abit like a ganglion cyst. Common to get after some type of injury etc. Can be painful to touch. Usually drain them as a treatment but they can grow back.

Just a thought .
 
Messages
76
@IreneF, no that's not true in the case of lyme disease.

@pepous, Do you know which bands on the WB are positive? If it's one of the bands specific to borrelia then you better follow up with a LLMD (lyme literate doctor) as soon as possible. MInocycline is active against borrelia but is usually not a first choice treatment, especially if you had the infection for a while.

Doctor is lyme literate I hope. He prescribed Minocyclin and Benemicin to treat it.

I do probably need CD and LTT test futhermore to confirm. Problem is that I already take antibiotics.

Thanks
 

msf

Senior Member
Messages
3,650
IreneF, I don´t think you can have antibodies to something if you´ve NEVER had an active infection, even if it was only a subclinical one.
 

msf

Senior Member
Messages
3,650
Ah, sorry, I can´t answer that, I don´t even know what Benemicin is. I took Minocycline for another infection, and read quite a lot about the side effects, most of which seem to be reversible, if that helps.

The thing with chronic Lyme is that there aren´t any standard protocols, only some suggestions on the ILADS site.
 
Messages
76
Ah, sorry, I can´t answer that, I don´t even know what Benemicin is. I took Minocycline for another infection, and read quite a lot about the side effects, most of which seem to be reversible, if that helps.

The thing with chronic Lyme is that there aren´t any standard protocols, only some suggestions on the ILADS site.

I really hope ATB will not screw me even more. Becouse I DONT know 100% if I trully need tham yet.
 

IreneF

Senior Member
Messages
1,552
Location
San Francisco
IreneF, I don´t think you can have antibodies to something if you´ve NEVER had an active infection, even if it was only a subclinical one.
You would make antibodies upon exposure to the antigen, whether or not anything else happened. As you already pointed out that's how vaccines work.
 

IreneF

Senior Member
Messages
1,552
Location
San Francisco



Sympthoms:
  • Unstable blood pressure/temperature
  • Overheating
  • Heart palp. which causes me not able to do anything
  • etc.
Whole thread here: http://forums.phoenixrising.me/index.php?threads/my-cfs-story.39326/
Those don't seem like symptoms of Lyme disease.

I used to take antibiotics without any hesitation, but now I think they should be avoided unless you have a clear-cut bacterial infection. Not only because of the danger of developing drug-resistant bacteria, but also because antibiotics wipe out your gut bacteria (intestinal flora or microbiota). We are just now discovering how important those organisms are to our health.
 
Last edited:

msf

Senior Member
Messages
3,650
You would make antibodies upon exposure to the antigen, whether or not anything else happened. As you already pointed out that's how vaccines work.

That´s why I wrote,´or you have had a vaccine.´ Unless you are suggesting that the OP had previously had a Lyme vaccine administered , then they must have had an active infection at some point (assuming it´s not a false positive) for there to be a detectable amount of antibody in the blood. That´s the whole point of antibody tests.
 
Messages
76
hmm several opinions and several opinions.

But good compromis would be to use ATB for just about few months maximally. Lets say 2 monts.

Than to stop it.

Is it OK?
 

msf

Senior Member
Messages
3,650
We aren´t doctors, and shouldn´t give medical advice, but I think most doctors would say that stopping a course of antibiotics before you finish the course is a bad idea. That´s not to say whether you should take the antibiotics or not.