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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Just wondering if a lot of people are still waiting to be tested for XMRV, I haven't got tested yet, but wan't to wait till they have a more reliable test.
Has that happened yet
Kat
Until there is a standardized test, I probably wouldn't pay to get tested. Right now a positive is probably a positive but without a standardized test, who knows what to make of a negative. And even with a positive test, could you get your physician to treat you with anti-retrovirals (some might be able to but I doubt that mine would or that I'd be willing to do so outside of a study that was closely supervised by someone who knows CFS)?
a new, more reliable serology test is coming soon, probably this summer.