What you said is so true, @lenora . I don't know how we'd get through the necessary things in life without adrenaline rushes, and I'm VERY grateful for it as well. It helps me get to the doctor. If it would only fix my plumbing problems.
Yes, I find my attention isn't what it used to be. Is it ME or something else entirely I?'ve been tested for the usual at this age, passed OK, but no sleep doesn't help much either. However, there are times when I'm much more alert with no sleep, than what passes for ME sleep at times. I feel worse with that.
To help myself, I stop answering the phone or taking calls at 4:00 p.m. Family & friends are well aware of that. All can text my husband in case of an emergency. I had to start doing that many years ago and it has helped. The same with eating....I don't drink anything after about 4:00 p.m. (OK, sips of water, but that's it) and have a small snack no later than 5:30 p.m. or so. I didn't read any of this, it just seemed to make sense. Time zones do make things harder, so I use e-mail a lot. I spend as much time on our porch as possible...calming and enjoyable.
But yes, our brain chemicals seem to be rather messed up. In some cases (mine for example) it's a mix of both physical and the leftovers of adrenaline. I've had brain surgery, so that's thrown into the mix, also. It will take time to figure this one out. Yours, Lenora.
I think I am on about day 3 of a PEM crash tied to too much emotional. I got very excited in a positive way, about possibly moving to where my daughter lives. A bizzarre version of the ME symptoms arose- my eyes are glued shut, I am massively inflamming.
My anxiety levels are increased dramatically.
Its so strange to just sort of passively witness it all. Or not so passively.
I hope you’re feeling better @Rufous McKinney the “happiness” crash always seems the meanest- because seriously who’s going to stop themselves from getting excited about something when we get so few chances to do that! But living near your daughter sounds so great 😄
I just watched this movie on Netflix that reminded me of what we’re going through with emotional triggers. It’s called “Ode to Joy” and the main character has Cataplexy (he passes out when he feels strong emotions, especially happiness) he keeps trying not to feel things and I could relate so well! I highly recommend it! I was crying with laughter… because it was good, not because my nervous system is extra lol