Is Anyone Here Going to the IACFS/ME Conference in San Francisco?

[NK17]

Does anybody knows why dr Kogelnik, one of our ME experts living in the Bay Area, is mentioned nowhere on the conference agenda? How could he be left behind?

I think Dr. Kogelnik is very busy setting up research and studies that are closer in nature to the biomedical research that the Invest in ME is trying to implement in the UK, here in the US.

I recently spoke with him and asked him about his "absence" on the SF International conference and he simply replied that he's working on other projects (this is more or less what I recall him saying, I'm not quoting his exact words).

Since last summer he has been doing a deep sequencing genetic study with Prof. Ronald W Davis, professor of biochemistry and genetics @ Stanford.

Prof. Davis is not only a top of the line world scientist who belongs to the American Academy of Sciences and Genetics but also personally touched by ME (his son is severely affected) and a wonderful human being.

I'm a patient of Dr. K so I'm naturally biased to think that he is the one to follow and trust .

By saying this I'm not discounting or downplaying the work of all the others clinicians/researchers in the ME arena.

I just wanted to bring my opinion about one of the few young doctors who seems to be willing to do some biomedical research and get as much help as he can, CDC included.

I really hope I will not be proved wrong by putting all my chips on him !

 

[Hope123]

I think Dr. Kogelnik is very busy setting up research and studies that are closer in nature to the biomedical research that the Invest in ME is trying to implement in the UK, here in the US.

I recently spoke with him and asked him about his "absence" on the SF International conference and he simply replied that he's working on other projects (this is more or less what I recall him saying, I'm not quoting his exact words).

Since last summer he has been doing a deep sequencing genetic study with Prof. Ronald W Davis, professor of biochemistry and genetics @ Stanford.

Prof. Davis is not only a top of the line world scientist who belongs to the American Academy of Sciences and Genetics but also personally touched by ME (his son is severely affected) and a wonderful human being.

I'm a patient of Dr. K so I'm naturally biased to think that he is the one to follow and trust .

By saying this I'm not discounting or downplaying the work of all the others clinicians/researchers in the ME arena.

I just wanted to bring my opinion about one of the few young doctors who seems to be willing to do some biomedical research and get as much help as he can, CDC included.

I really hope I will not be proved wrong by putting all my chips on him !

My suggestion to anyone who is able to do it is, like a financial investment portfolio, to diversify your holdings! That is, I have some means so I see more than one ME/CFS specialist (but each knows I see the other and they cooperate) and I put money/ effort into different groups as well. It's not so much about who is right or wrong in the end but rather I feel we are much more likely to come to a quicker/ correct conclusion when different people get support.

 

[NK17]

I agree with you @Hope123.
What you call financial investment portfolio approach with seeing different ME/CFS doctors is the optimal approach, just very expensive and physically tasking.

 

[Gamboa]

Hey everyone. I'm back. It was great: Lots of good news, not as much as I had hoped for, but enough coming in the near future, I think.
Please check out Searcher's 5 articles: 1 on the day at Stanford and 4 for each day of the conference. She and Hope, and possibly other people( Firestorm?) , have put together a tremendous account of all the talks. I'll add some comments as the days go by and as my brain permits.
Hope all of you who were at the conference are recovering and not crashing too badly.

 

[Gamboa]

By the way, to find the reports, go to News and Research and then Phoenix Rising Articles. I mention this since I couldn't find them. Perhaps it is just me but I seem to have trouble getting around here some days. :thumbdown:

 

[Firestormm]

By the way, to find the reports, go to News and Research and then Phoenix Rising Articles. I mention this since I couldn't find them. Perhaps it is just me but I seem to have trouble getting around here some days. :thumbdown:

Or you can go to the Home Page and scroll down through the articles - which appear in date of publication order (unlike the forum thread of articles) - and click on the title or 'read more'. I often find it easier to scan this Home Page list myself

Click the tab at the top of this page:

Home Page currently looks like: