Gingergrrl
Senior Member
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Just to add I have severe immune deficiency because of ME - my IgG levels are all over the place. I can't fight ANY infection which was just recurrent shingles then I developed a liver disease called Primary Sclerosing Cholangitis which I was told I had when I was very ill overseas (we lived in Cape Town when all this happened and the care was just excellent). I get infections in the bile ducts and when I came back to doctors in the UK they just laughed and me and said nonsense. I got ten minutes of their time and was out the door. Then I went under the Royal Free for a year and they did NOTHING about these attacks, no care plan, they REFUSED to admit me into the liver ward and I lay on my bathroom floor vomiting bile and crapping bile out for five days. They didn't believe I was sick either so I'm being taken under a new doctor but it doesn't change the fact that if I get another attack of cholangitis - I have no hospital to go to and cholangitis can kill you and probably will kill me.
@Uno This is so terrible, I don't even know what to say. Are you able to go back to Cape Town or have treatment in another country? I know that is extreme but you are facing such extreme negligence right now, it is criminal. Can you switch to another hospital like what JamBob recommended?