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CDC PCOCA conference call on 2/23/2015 with Dr. Montoya and Dr. Unger

Discussion in 'Upcoming ME/CFS Events' started by Wally, Jan 24, 2015.

  1. SDSue

    SDSue Southeast

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    I'm on. Anyone else?
     
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  2. Countrygirl

    Countrygirl Senior Member

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    I am being dense here, but can someone give me the link please.....or is it not possible for people in the UK to listen?

    Edited to say I think this is probably not available on the internet but only by phone.:cry:
     
  3. Ritto

    Ritto

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    I'm on the call, in the UK, using Skype

    I don't think I'm being charged.
     
  4. Countrygirl

    Countrygirl Senior Member

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    Thanks Ritto. My Skype isn't set up at the minute so I hope someone can report back to us.
     
  5. Nielk

    Nielk

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    Can anyone report back to us, please? I could not listen in because of my migraine.
     
    oceiv likes this.
  6. SDSue

    SDSue Southeast

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    I hung in there for about half. I couldn't understand Montoya most of the time but it seemed to be a rundown of past and current studies?
     
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  7. searcher

    searcher

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    I put up some notes at https://twitter.com/primalWoman. The notes aren't great and there may be mistakes, so if anyone listened and sees any errors in my tweets could you let me know?
     
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  8. halcyon

    halcyon Senior Member

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    Unfortunately I had a really hard time understanding Dr. Montoya, but as best I could tell I didn't hear anything new.
     
  9. catly

    catly Senior Member

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    I half listened in, missed the first 15 minutes. I didn't really catch anything new.
     
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  10. CBS

    CBS Senior Member

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    I have an audio recording of the entire hour. It needs some editing. Need to run out but hope to post it this evening, assuming that this isn't against any of the forum rules @tina @Sasha
     
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  11. Sasha

    Sasha Fine, thank you

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    I don't recognise tina's name (sorry, @tina!) but I'm not in charge of the forums. I'm a nobody (I just talk a lot!). :cool:
     
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  12. Sasha

    Sasha Fine, thank you

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    @CBS, did you mean Kina? She's in charge of moderation.
     
  13. nandixon

    nandixon Senior Member

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    Something additional Dr. Montoya mentioned that I hadn't heard before - and I couldn't quite catch all he said because his accent was so heavy (although he was very articulate!) - was that they had found a 100% correlation between ME/CFS/SEID and an illness called Systemic Inflammatory Response Syndrome (SIRS)* in some important aspect (cytokines or some other immunological profile??).

    *http://en.wikipedia.org/wiki/Systemic_inflammatory_response_syndrome
     
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  14. searcher

    searcher

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    Very interesting, I must have missed that. It would be huge news if they found that strong a correlation!
     
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  15. Wally

    Wally Senior Member

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    Interesting to look at possible causes of this condition.
    If you go further to review "adrenal insufficiency" there is a tie in to AIDS and autoimmune thyroid conditions.
     
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  16. SDSue

    SDSue Southeast

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    Thanks for the notes. Nicely done!
     
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  17. Wally

    Wally Senior Member

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    @searcher,
    Thank you for taking a few notes and posting them. I was listening, while driving, so note taking was out of the question.

    I was confused when I thought Dr. Montoya said there was a possibility that the illness could be contagious (? not sure if that was the word he used) in some instances, but they just do not know for sure. Did he say or mean to say that this possibility could be seen in cluster outbreaks, but not in non-epidemic cases?
     
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  18. Sushi

    Sushi Moderation Resource Albuquerque

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    Thanks, great!

    BTW, that obnoxious news clip from KOAT 7 is my local ABC Affiliate. Local advocates have absolutely broiled the station. KOAT took the clip down very quickly, but that is NOT enough! :devil:

    Sushi
     
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  19. halcyon

    halcyon Senior Member

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    Yes, he seemed to say that while it doesn't appear to be infectious in endemic cases, it does appear to be in epidemic cases.
     
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  20. searcher

    searcher

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    Happy to do so. I wish I could have taken more.

    I agree it was a little confusing. It seemed like he thought it wasn't contagious except in its epidemic form, so family members/friends shouldn't be worried about catching the illness from patients. Even the epidemic form is not necessarily contagious, but I am not sure what he thinks the cluster outbreaks are (i.e. particularly virulent virus, environmental toxin, etc.)
     
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