JoanDublin
Senior Member
- Messages
- 369
- Location
- Dublin, Ireland
Hi there,
Does anyone else here suffer from intractable constipation? My 13 year old, who has been diagnosed with Post viral illness, has this as a complication. He has suffered now for 14 months and been hospitalised six times so far. He is currently using a Peristeen Anal Irrigation system at home supplemented with enema treatments. He had a Bowel biopsy in May which was normal.
He had a period of recovery between June and September this year during which his post viral symptoms improved greatly and after four weeks of a slow and steady improvement, his bowels just started working normally again. Unfortunately in early Sept he picked up a vomiting and diarrhoea 'bug' in school and this has kicked off everything again, including the complete shut down of his bowels again. His post viral symptoms such as fatigue, sleep reversal, body pain, etc have also returned.
Since the bowel biopsy he has suffered severe pain in his back passage which no one can explain. The pain is so severe that he sometimes spends several hours at a time sitting on the toilet as this position eventually helps to ease the pain to a manageable level.
He has proved resistant to all oral medications to get his bowels moving, including medications which are used to prepare for bowel surgery. Nothing has worked.
My theory is that he may be creating an autoimmune reaction to these viruses which is targeting his digestive system and which is causing his bowels to switch off. What do you think? is there any research out there that someone could point me to?
His doctors here in Ireland are stumped. They have never come across someone like this who has such intractable constipation. At this stage I am desperately looking for anyone else anywhere in the world who has suffered similar symptoms.
Any help would be very much appreciated. We're desperate at this stage and his doctors are now suggesting putting him on Prozac which I think is highly inappropriate. It feels like just because they can't figure it out, they want to throw psychiatric drugs at him to see if it helps! It's getting harder and harder to rebuff them though
Does anyone else here suffer from intractable constipation? My 13 year old, who has been diagnosed with Post viral illness, has this as a complication. He has suffered now for 14 months and been hospitalised six times so far. He is currently using a Peristeen Anal Irrigation system at home supplemented with enema treatments. He had a Bowel biopsy in May which was normal.
He had a period of recovery between June and September this year during which his post viral symptoms improved greatly and after four weeks of a slow and steady improvement, his bowels just started working normally again. Unfortunately in early Sept he picked up a vomiting and diarrhoea 'bug' in school and this has kicked off everything again, including the complete shut down of his bowels again. His post viral symptoms such as fatigue, sleep reversal, body pain, etc have also returned.
Since the bowel biopsy he has suffered severe pain in his back passage which no one can explain. The pain is so severe that he sometimes spends several hours at a time sitting on the toilet as this position eventually helps to ease the pain to a manageable level.
He has proved resistant to all oral medications to get his bowels moving, including medications which are used to prepare for bowel surgery. Nothing has worked.
My theory is that he may be creating an autoimmune reaction to these viruses which is targeting his digestive system and which is causing his bowels to switch off. What do you think? is there any research out there that someone could point me to?
His doctors here in Ireland are stumped. They have never come across someone like this who has such intractable constipation. At this stage I am desperately looking for anyone else anywhere in the world who has suffered similar symptoms.
Any help would be very much appreciated. We're desperate at this stage and his doctors are now suggesting putting him on Prozac which I think is highly inappropriate. It feels like just because they can't figure it out, they want to throw psychiatric drugs at him to see if it helps! It's getting harder and harder to rebuff them though