in an earlier post i suggested that others of us reach out to and have a chat (or hold a formal interview?) with a list of other folks, people coffin mentioned in my chat with him. this is the list i suggested:
1) the Ruscettis (husband and wife team) at the National Cancer Institute
2) the folks at the protein expression lab at NCI coffin mentioned
3) Brigette Huber at Tufts, who is studying XMRV,
4) Abott labs, the lab coffin said is making the XMRV test for the national blood supply.
HOWEVER, I NOW THINK WE SHOULD NOT EMAIL SANDY AND FRANK RUSCETTI at the national cancer institute. i say this because i did email frank asking him about his upcoming Tulane Seminar on XMRV (see this thread about that seminar
http://www.forums.aboutmecfs.org/sh...uman-Blood-Products-Ruscetti&highlight=tulane)
and he forwarded my email to judy mikovits, of all people, and she wrote this to me (so she replied to my email to frank, frank did not reply):
"Frank will never present anything that I don't know about. So always ask me because I need him to be able to focus on the work! One thing that is difficult for all of us right now is that the scientists get hundreds of not thousands of emails from patients and scientists are not used to this. If your congressmen/senators and representatives received as many emails as we have maybe they would do something to make the research happen faster? Most of what Frank will present in June is the methodology that we have been developing and I presented in Prague. The seminar at Tulane ... will focus on virology and cancer.
Hope all is well..we are getting there."
so i now will say that i think we should not contact the Rusettis. not sure what to say about the other scientists. clearly judy is asking us to contact our congresspeople, and her, but not the scientists. she said all this very compassionately, by the way. she was very supportive in how she wrote it all to me.
warmly,
rrrr