Inner vibrations....what are they really?

[FromHolland]

Yes I was thinking that too but I take around 500 mg = 600 mg magnesium citrate a day with food and without calcium so I would have thought that should have been sufficient. Perhaps I should try and get hold of magnesium injections to see if that would help[.

It feels like a dead nerve that is trying to come back to life!

Pam

Maybe it's a matter of the correct/more optimised dosage?

@kangaSue could there be a possible linkage with CIPO and these inner vibrations described on this thread?

 

[kangaSue]

Not something I've been affected by so I haven't really had cause to look into before or keep track of it but it's something I've seen crop up as a symptom that sometimes occurs in those with any of the abdominal vascular compression syndromes (SMA Syndrome, Nutcracker Syndrome, Median Arcuate Ligament Syndrome) rather than in CIPO.
Possibly the case that those also having Ehlers Danloss Syndrome are a more affected population where the internal tremors are concerned.

 

[bertiedog]

Possibly the case that those also having Ehlers Danloss Syndrome are a more affected population where the internal tremors are concerned.

That's really interesting what you have said here as I do have some hypermobility and POTS which isn't severe but was around Christmas time after I had some mystery virus which caused a severe crash for several months. I found yesterday that using my TENS machine in 2 places on my right thigh helped a bit, at least whilst it was being used I couldn't feel the vibrations.

I desperately want some treatment but too scared to go to the physio who allso treats athletes at a sports venue because if anyone could pick up Covid 19 she would be in the front line.

Pam

 

[FromHolland]

That's really interesting what you have said here as I do have some hypermobility and POTS which isn't severe but was around Christmas time after I had some mystery virus which caused a severe crash for several months. I found yesterday that using my TENS machine in 2 places on my right thigh helped a bit, at least whilst it was being used I couldn't feel the vibrations.

I desperately want some treatment but too scared to go to the physio who allso treats athletes at a sports venue because if anyone could pick up Covid 19 she would be in the front line.

Pam

Have you tried a gaba supplement? If the vibrations are caused by overactive nerves, it should at least calm them down

 

[FromHolland]

Not something I've been affected by so I haven't really had cause to look into before or keep track of it but it's something I've seen crop up as a symptom that sometimes occurs in those with any of the abdominal vascular compression syndromes (SMA Syndrome, Nutcracker Syndrome, Median Arcuate Ligament Syndrome) rather than in CIPO.
Possibly the case that those also having Ehlers Danloss Syndrome are a more affected population where the internal tremors are concerned.

Very interesting, do you happen to have an article linking these cell phone vibrations with abdominal vascular compression syndromes?

Also, slightly off-topic
@kangaSue do you know to what extent SMA syndrome and/or disturbed duodenal motility impacts the effectiveness of time-released capsules (intended for small intestine or colon)? There's for example a peppermint soft gel that I want to try for improved GI motility and this supplement is only effective if released in the small intestine (research finding). Since both solid foods and liquids are stuck in the duodenum with SMA syndrome I'm worried that the soft gel will already be released in my stomach / duodenum and cause local irritation.

 

[bertiedog]

Have you tried a gaba supplement? If the vibrations are caused by overactive nerves, it should at least calm them down

I do have GABA and it does suit me but haven't taken it for this problem. It is connected to energy running out cos I didn't have it so much today until I went for a 15 minute walk with my dog and now the thigh is vibrating despite wearing a thigh support.

Actually a friend who is a very experienced massage therapist said she is happy to give me a treatment. I don't mind going there because it will only be the two of us in the building and she has her own small room set back from the hotel. Generally she isn't working, just has the odd client who has ongoing issues.

Pam

 

[kangaSue]

Very interesting, do you happen to have an article linking these cell phone vibrations with abdominal vascular compression syndromes?

Nothing in the medical literature I'm afraid and I only have anecdotal evidence of it from chatting with others in facebook groups for these conditions.

Also, slightly off-topic
@kangaSue do you know to what extent SMA syndrome and/or disturbed duodenal motility impacts the effectiveness of time-released capsules (intended for small intestine or colon)?

That would come down to what your gastric emptying rate is and to what degree of obstruction there is to the duodenum. It all passes eventually and a lot of people with SMA Syndrome still have normal gastric emptying rate but that's not something you can tell without having either a Gastric Emptying Scintigraphy study or Barium Swallow with Small Bowel Follow Through test.
You can a bit of idea of whole GI transit time by swallowing some whole corn kernels and seeing how long it takes to come out the other end, or having a feed of beetroot and look for the red colour at the other end (which doesn't involve any "sifting" like corn likely will).

 

[FromHolland]

You can a bit of idea of whole GI transit time by swallowing some whole corn kernels and seeing how long it takes to come out the other end, or having a feed of beetroot and look for the red colour at the other end (which doesn't involve any "sifting" like corn likely will).

Thank you!! Good suggestion, wil give it a try!

That would come down to what your gastric emptying rate is and to what degree of obstruction there is to the duodenum. It all passes eventually and a lot of people with SMA Syndrome still have normal gastric emptying rate but that's not something you can tell without having either a Gastric Emptying Scintigraphy study or Barium Swallow with Small Bowel Follow Through test.

3 years ago I already had a barium swallow test showing a large part of the GI tract with follow through, and except for a relative stenosis of the 3rd part of my duodenum everything was just normal in terms of motility. But things might be changed now and my specialist has lined me up for a 2nd barium swallow test and/or gastric emptying scintigraphy study now. I hope to hear back from him soon, but guess he's also busy with this nasty Corona virus, so it might take a while.

@kangaSue on another thread you mentioned my symptoms might also be due to CIPO. I'm curious to find out what symptoms CIPO exactly could cause in patients. If I read about it online, I see minor differences with IBS (i..e, pain, bloating, nausea, constipation/diarrhoea, rumbling sounds, belching) and also overlaps with compression syndromes like SMA (for which I have the technical diagnosis). Are there any hallmark symptoms distinguishing CIPO from other motility disorders and compression syndromes?

 

[kangaSue]

3 years ago I already had a barium swallow test showing a large part of the GI tract with follow through, and except for a relative stenosis of the 3rd part of my duodenum everything was just normal in terms of motility. But things might be changed now and my specialist has lined me up for a 2nd barium swallow test and/or gastric emptying scintigraphy study now. I hope to hear back from him soon, but guess he's also busy with this nasty Corona virus, so it might take a while.

A problem with SMA Syndrome (SMAS) is that it can be mild, transient and be positional related and I've lost count of the amount of people who I have seen commenting that their SMA Syndrome (SMAS) was only picked up in doing either an upright CT scan and/or an upright barium swallow test.

There's a couple of other issues with a barium swallow test. One is that the liquid contrast may be able to pass an area of mild stenosis but solids (even though reduced to chyme) may not transit as easily. I've also seen a number of cases where a slowed transit of contrast in a section of duodenum has been interpreted as a normal transit study whereas when reviewed by a doctor expert, they deemed it to be symptomatic of SMAS.

on another thread you mentioned my symptoms might also be due to CIPO. I'm curious to find out what symptoms CIPO exactly could cause in patients. If I read about it online, I see minor differences with IBS (i..e, pain, bloating, nausea, constipation/diarrhoea, rumbling sounds, belching) and also overlaps with compression syndromes like SMA (for which I have the technical diagnosis). Are there any hallmark symptoms distinguishing CIPO from other motility disorders and compression syndromes?

It's possible for CIPO to be assumed to just be IBS where symptoms are mild. CIPO usually only gets diagnosed in those having pseudo obstruction events and these cause significant abdominal pain along with periods of hyperactive bowel sounds and interspersed with no bowel sounds at all, and a standard x-ray often shows dilated air/fluid bowel loops.

I have had similar symptoms and findings from having chronic (non-occlusive) mesenteric ischemia (but don't have the periods of no bowel sounds with it). It can also be hard to tell severe cases of SMAS apart from CIPO too if going on symptoms alone.

Antroduodenal manometry is the most common test done to diagnose CIPO but I doubt that a doctor would do this test on anyone not having severe symptoms of episodic obstruction. A Wireless Motility Capsule (SmartPill) test can pick up both gastroparesis and CIPO
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4015195/

 

[FromHolland]

A problem with SMA Syndrome (SMAS) is that it can be mild, transient and be positional related and I've lost count of the amount of people who I have seen commenting that their SMA Syndrome (SMAS) was only picked up in doing either an upright CT scan and/or an upright barium swallow test.

There's a couple of other issues with a barium swallow test. One is that the liquid contrast may be able to pass an area of mild stenosis but solids (even though reduced to chyme) may not transit as easily. I've also seen a number of cases where a slowed transit of contrast in a section of duodenum has been interpreted as a normal transit study whereas when reviewed by a doctor expert, they deemed it to be symptomatic of SMAS.

My doctor did mention that the position in which the images were taken impact the angle/distance and severity of the clamp, so that might explain why I had no/mild stenosis in upright position with barium swallow test, but pretty severe stenosis in supine position with 2 CT examinations.

It's possible for CIPO to be assumed to just be IBS where symptoms are mild. CIPO usually only gets diagnosed in those having pseudo obstruction events and these cause significant abdominal pain along with periods of hyperactive bowel sounds and interspersed with no bowel sounds at all, and a standard x-ray often shows dilated air/fluid bowel loops.

I have had similar symptoms and findings from having chronic (non-occlusive) mesenteric ischemia (but don't have the periods of no bowel sounds with it). It can also be hard to tell severe cases of SMAS apart from CIPO too if going on symptoms alone.

Antroduodenal manometry is the most common test done to diagnose CIPO but I doubt that a doctor would do this test on anyone not having severe symptoms of episodic obstruction. A Wireless Motility Capsule (SmartPill) test can pick up both gastroparesis and CIPO
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4015195/

What's interesting is that most of my radiographic findings show air configurations/bubbles, mainly in my colon, but sometimes also in my small intestine. However without any dilated bowel loops. Would that be something uncommon in CIPO? I do have periods of hyperactive bowel sounds mixed with days that I notice hardly any sounds and pain/discomfort as well as feeling of numbness, but my wife has them too and she has IBS.

I have attached a few of my radiographic findings where you can see the air, but not dilated bowel loops.

 

[kangaSue]

My doctor did mention that the position in which the images were taken impact the angle/distance and severity of the clamp, so that might explain why I had no/mild stenosis in upright position with barium swallow test, but pretty severe stenosis in supine position with 2 CT examinations.

Are they questioning an SMA Syndrome diagnosis because of the barium swallow test result? If so, I think you would be best served seeking out a doctor experienced with treating SMAS patients.

I'm not proficient at interpreting CIPO imaging I'm afraid and only really know that the typical radiographic findings are the dilated bowel loops with air fluid levels and that it will come with the worst pain that you will have ever felt before when things really flare up.