In memory of Walker Storz (frozenborderline)

[Rebeccare]

I am very sorry to share that frozenborderline, who was active here for several years, died on April 30th. https://www.devargastaos.com/obituaries/walker-storz

 

[almost]

Thank you for letting us know, @Rebeccare. Very touching tribute in the link you provided. Such a tragedy that his life was cut so short.

During the course of his illness, Walker spent much of his limited energy researching treatments to help himself and other ME patients

Me as well.

 

[Violeta]

This is very sad. So sorry.

 

[Mary]

@Rebeccare - I am so sorry to hear this!! I remember frozenborderline very well. He was very passionate and determined to make a difference with this god-awful illness. Thank you for letting us know -

 

[Viala]

So sorry to hear this. He had interesting posts here, I remember them as well.
This situation makes me sad and angry at the same time, he was so young.

 

[Rufous McKinney]

I was just thinking about him the other day. I thought I should send a message. But then I think I"m bothering somebody else.

This is very distressing. He was so intelligent and creative. Also frustrated by all this, understandably.

But I am grateful to know, hard as it is. Walker. Yes, I watched some of the Play his friends in Vermont put on.

 

[Rufous McKinney]

bump sad news

 

[Zebra]

I could barely bring myself to click on this thread.

Yet another forum member has passed.

I read Walker's obituary with great interest, as I remember his posts well.

I am so sad (and mad) that our healthcare system had nothing more to offer Walker than hospice.

 

[cfs since 1998]

I was away from the forum for awhile so we didn't cross paths but this is very sad. Only 30 years old. I appreciate the family explaining his situation in his obituary.

Usually ME/CFS patients or their families are so embarrassed by having a condition called "chronic fatigue syndrome" they don't mention it. Which is also sad.

 

[Artemisia]

I'm very sorry to hear this. I liked his podcasts and his writing here and had been wondering how he was doing.

Walker's creations gave me food for thought the past few years. I related to his passion and anger about the marginalization of pwME. It was because of Walker I started listening to Nico's solo albums based on a blog post he wrote about her. I also loved the song "Frozen Warnings" --where he got his username from.

I am sorry for the loss his family and friends are suffering.

What a cruel illness.

"Into numberless reflections
Rises a smile from your eyes into mine
Frozen warnings close to mine
Close to the frozen borderline

Over railroad station tracks
Faintly flickers a modest cry
From without a thousand cycles
A thousand cycles to come
A thousand times to win
A thousand ways to run the world
In a similar reply

Friar hermit stumbles over
The cloudy borderline
Frozen warnings close to mine
Close to the frozen borderline"