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The XMRV testing page on the IC website has been updated again to include the first paragraph below:
I'm not sure whether anyone's mentioned it in this thread, but, The IC withdrew their test shortly after a lady on another forum who tested XMRV+ with VIPdx said they'd pay to be tested with the IC, and said they'd go to the papers if they tested negative,
Food for thought.
Hi Knackered,
Would you clarify, please, who the lady had said this to? Direct to ICL or on a forum?
The webpages were taken down mid morning, on Monday 8 February, following the issuing of a notice by the ME Association on the Saturday, and following an exchange between Fiona Verity and Prof Wessely on 5 February.
If the lady was in direct contact with ICL, can you confirm the date, please, that the lady discussed this with ICL?
Thanks,
Suzy
I don't remember her name, she posted on the WPI discussion section of their facebook page. I made a comment on this forum about it then realised I should take down the post incase anyone from the IC read it. She also took her post down from the WPI board.
I'm sure someone else on this forum will be able to give you more information.
The FOI request that I sent IC asked about the aims of the study.
I am a very slow thinker but I finally realised that they are saying that if any one needs XMRV testing done as part of a research project they will do it for them at a charge of 200 a test. However, they will only do so if the research has been approved by an ethics committee.
I think if I was a researcher I would be wary of spending my grant on a test that has not been shown capable of detecting XMRV in a normal blood sample, only in a plasmid.
We will have to watch that any research done on ME doesn't use this test.
Mithriel