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Impact of health conditions based on burden of DALYS (don't think ME/CFS included)

Dolphin

Senior Member
Messages
17,567
https://twitter.com/PWGTennant/status/643756604387651584

Imagine if health resources (and/or research funding) were distributed according to burden of DALYs? Who'd win/lose?


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Comes from WHO's new #GBD tool: http://vizhub.healthdata.org/gbd-compare/

Anyone able to see whether ME/CFS on this? I know people like @Snow Leopard have argued we might do well if research resources were based on DALYs but not good if we're not registering.

Definition of DALY:
The disability-adjusted life year (DALY) is a measure of overall disease burden, expressed as the number of years lost due to ill-health, disability or early death.
 

A.B.

Senior Member
Messages
3,780
The DALY is partially based on how bad the general population thinks the illness is.
 

alex3619

Senior Member
Messages
13,810
Location
Logan, Queensland, Australia
The DALY is partially based on how bad the general population thinks the illness is.
Yes, DALYs are based on a fudge factor, not that they call it that, though not the general public I think. Someone decides how bad a disease is, and gives it a multiplier. CFS used to rate very low. There is some official, or group, somewhere, who regard CFS as a non-issue.