snowathlete
Senior Member
- Messages
- 5,374
- Location
- UK
Background: I have ME/CFS, had it diagnosed for a couple of years, and had it at least a year before that. I had mono when i was a teen very very badly. I dont catch any colds or anything, as my immune system is ramped up all the time.
I read about Dr Lerner and Montoya's research, first on PR, and then on their own site:
http://chronicfatigue.stanford.edu/infections/herpes.html
I went to my GP, to ask for tests on the Herpes viruses which i am sure i have at least one of, because of my background. And the possible co-infections. I explained the research and said that i would like to get Valtrex, or similar drugs to treat the Herpes viruses if i do not have a co-infection.
She was okay on the whole and I think she was sympethitic. But there were also clear signs of sceptism and an NHS bred default to highlight the 'treatment' on offer at the ME Clinic (CBT, GET, and Pacing). I explained that i had tried all three but none helped make my condition any better, and that that wasnt a surprise to me because i have a physiological illness. She wasnt familar with the co-infections, and doubted that the NHS would test for them. But said she would look into it, and the Herpes tests. She said she would read what i gave her, which was a copy of the research, the experts involved, their treatments etc.
I explained that i had researched many different ME 'treatments' but that this one really stands out and has been properly studied etc. I also fit the demographic and told her that.
I expect that the end result will be some simple Herpes tests, but that i will have to get the other co-infection tests myself privately (does anyone know where i can get these done?) I will probably end up having to buy the drug myself, though i mentioned that some people in the UK are on these drugs by prescription!
So, i have to sit and wait on that....what do you think?
I read about Dr Lerner and Montoya's research, first on PR, and then on their own site:
http://chronicfatigue.stanford.edu/infections/herpes.html
I went to my GP, to ask for tests on the Herpes viruses which i am sure i have at least one of, because of my background. And the possible co-infections. I explained the research and said that i would like to get Valtrex, or similar drugs to treat the Herpes viruses if i do not have a co-infection.
She was okay on the whole and I think she was sympethitic. But there were also clear signs of sceptism and an NHS bred default to highlight the 'treatment' on offer at the ME Clinic (CBT, GET, and Pacing). I explained that i had tried all three but none helped make my condition any better, and that that wasnt a surprise to me because i have a physiological illness. She wasnt familar with the co-infections, and doubted that the NHS would test for them. But said she would look into it, and the Herpes tests. She said she would read what i gave her, which was a copy of the research, the experts involved, their treatments etc.
I explained that i had researched many different ME 'treatments' but that this one really stands out and has been properly studied etc. I also fit the demographic and told her that.
I expect that the end result will be some simple Herpes tests, but that i will have to get the other co-infection tests myself privately (does anyone know where i can get these done?) I will probably end up having to buy the drug myself, though i mentioned that some people in the UK are on these drugs by prescription!
So, i have to sit and wait on that....what do you think?
