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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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@Judee Good idea but Cant you just ask your doc for valtrex? They seem to dispense that loke candy.
I just want the authority to write my own labs and Prescriptions. AKA Dr Heaps 😉
actually you can. you can go to any laboratory and do any diagnostics you want. they sometimes even draw the blood. at least in germany they do.
you just have to pay for it.
the prescriptions you can't without writing your own resume, but a dr heaps does exist. so is possible. though i guess its not legal in your country?
in my city we had a dr. with same first and lastname just one parallel street over. that was funny. though i never did anything illegal. just saying what a funny coincidence.
but if you got money - according to the theme of this thread - then you can buy any medical practicioner and doctor and let him write any prescription and diagnosis you want.
its just a question of how much.
medical people do this all the time. usually they are bought off by pharma companies, but you enjoy the same privilege - with enough money .
though the really good doctors won't do that. they are not in for the money, they would be deeply hurt by a proposal like this. maybe its a way of separating the good from the bad docs.
thats a terrible word. lets call it, financial motivation boostbuying off
probably none. as i did come to realization that money isnt the problem.
How much does he charge? do you know?If money wasn't a concern, I think I would try Dr Dantini in Florida because I've heard he still treats with antivirals.
You could read his book first to see how he thinks about things. If your library offers Hoopla you could read it for free: https://www.hoopladigital.com/title/12381729
He also has some info on his website. https://www.drdantini.com/treatment/treatment-process/
I didn't get through the book myself because of brain fog but it seems like he leans towards fibromyalgia but still treats lots of times with the antivirals.
One doctor has already labeled my ME as Fibro. I wouldn't care which they call it as long as they try to treat it and not with psychological meds.
IIRC, someone said he tends to stick with the main antivirals like Valtrex and Valcyte and doesn't venture into the others as much.
Anyway, that's where I would start if I could.
This functional designer doc service - would they prescribe stuff like Guanfacine, Ivbradine, Abilify etc.?@linusbert yeah its so annoying though typically its a 400-650 dollar telemedicine hoop jumping consult just to get some med prescribed
you ought to be able to prescribe yourself. and save that money for the med and the time and stress for a netflix show
Im with @heapsreal Spare me the hoops and extra bucks and let me order what i want. I ll sign any waiver that i want to go the DIY route with option to get an opinion or discussion when i feel i want that. Weve had a thread on this before.
@Judee
Guanfacine is a great example - was going to have to spend hundreds for a dysautonomia tele visit with a long wait so that she coukd recommend to my doc to order guanfacine.
I got lucky one of my docs willing to try. (Then covid got in the way and i not even sure what i did with the script!)
...... Get tired of solo management. Theres a virtual and email only functional designer doc servixe which i was tempted by but its like 400 a month and since they never see u in person, theres some things they cant do....
This functional designer doc service - would they prescribe stuff like Guanfacine, Ivbradine, Abilify etc.?
and also believe in CFS?
If they do it would be great.
I also like heapsreal's idea