• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

IBS, Coeliac disease and ME/CFS: MEA website survey

charles shepherd

Senior Member
Messages
2,239
MEA website home page: http://www.meassociation.org.uk

Results so far:

The MEA Quick Survey

  • If you have irritable bowel symptoms / syndrome in addition to ME/CFS, have you ever been tested to exclude coeliac disease?
    • YES - definitely (53%, 37 Votes)

    • YES - possibly (9%, 6 Votes)

    • I don't know (3%, 2 Votes)

    • NO (29%, 20 Votes)

    • I don't have any IBS symptoms (6%, 5 Votes)


      Total Voters: 70
Polls Archive
 

charles shepherd

Senior Member
Messages
2,239
I'm surprised that the proportion answering that they have never been tested is so high.

May be related to the fact that some of my medical colleagues here in the UK are diagnosing IBS far too easily and aren't looking for the warning signs that there may be another cause for IBS symptoms
 

Scarecrow

Revolting Peasant
Messages
1,904
Location
Scotland
May be related to the fact that some of my medical colleagues here in the UK are diagnosing IBS far too easily and aren't looking for the warning signs that there may be another cause for IBS symptoms
I'm sure that's true but it wasn't what I was thinking of. It's bad enough that people with IBS symptoms aren't getting tested to rule out coeliac disease. It's far worse that pwME who also have IBS aren't getting tested.

But in response to your point, it makes me wonder what proportion of people with IBS but without suspected ME haven't been tested for coeliac disease. Presumably a lot more than 30%.