IBS-C Ceases after Treatment

Treeman

Senior Member
Messages
903
Location
York, England
HI, I thought I would share my findings of eliminating my IBS-C.

I have the impression that my ME CFS could be caused by continued inflammation, whether that's because of persistent uncontrolled antigen activity or immune dysfunctional, I don't know.

I took the JAK inhibitor Tofacitinib at a daily dose of 5mg and after 3 days I noted my IBS had completely stopped after 30 years. I was able to eat wheat and other products again after not being able to for years and I also noticed some of my food intolerances had improved. Unfortunately, after 6 weeks I decided to stop the treatment as I noticed I had developed a chronic respiratory infection and thought it was due to the medication. Four days after stopping the Tofacitinib my IBS returned. A few weeks after stopping the treatment the respiratory infection ceased.

I tried to make sense of what had happened with some of the things I know about my health. JAK inhibitors are an immune suppresser, but this research Here informs that they "work by attenuating multiple cytokine signalling pathways to mediate dysregulated immune responses involved in the pathogenesis of IBD"

Here I then noted this research that informs "Resected mesenteric lymph node [MLN] cells from 19 patients [9 CD, 10 UC] were analysed". At this point I remembered that a CT imaging I had previously undertaken had commented that I had, "shotty mesenteric lymph nodes up to 1cm"

The mesentery is a fold of membrane that attaches the intestine to the wall around the stomach area and holds it in place. Mesenteric lymphadenitis is swelling of the lymph nodes in the mesentery.

Here It informs that, Mesenteric lymphadenitis, a swelling of lymph nodes in the mesentery (the tissue connecting the intestines to the abdominal wall), can be a cause of abdominal pain and discomfort, potentially mimicking symptoms of Irritable Bowel Syndrome (IBS)

So, I'm left considering that the swollen lymph nodes I have are the cause of my IBS. I have had in addition to the CT scan a colonoscopy and they both inform that there is no abnormality in the colon.

During the Tofacitinib treatment my fatigue did not improve. I share this with the hope it helps someone.
 

Dysfunkion

Senior Member
Messages
539
I know it is! I never seen nor considered that where the inflammation could be coming from. I never thought the thing holding the organs can get inflamed in itself. Mine also doesn't feel like its in the intestines or specifically the stomach or any organ around it. Its very vague when its there and just feels like bloating yet having even the best bowel movement or gas doesn't do anything for it. When its active my immune system and other symptoms are going nuts. I tame my immune system and it doesn't matter if I ate an entire bakery, the bloating just stops and I can go normally again.
 

Dysfunkion

Senior Member
Messages
539
How do you tame your immune system?

So far the only thing doing it better more consistently is serrapeptase but I still need to be very careful with what I do and consume or the brain inferno starts creeping right back. Like last night I didn't eat well and today was unfortunately one of the nastier days in the kitchen at work with what I was touching and inhaling so despite the serra barrier I'm still feeling quite spicy today. At the same time too, the worst time for me immune wise is always 5-6 PM with a taper up and down before that. The interesting thing is if I eat or drink anything in this window it will compound it rapidly whereas outside that under enough control it won't as much but depending on what I do I'll get longer term fluctuations which support the peak at that time range. So it's like the gut/immune loop with a circadian component. Very strange.
 

Wayne

Senior Member
Messages
4,680
Location
Ashland, Oregon
with what I was touching and inhaling

Hi @Dysfunkion -- Are you familiar with NAET? I've had good success with some NAET sessions many years ago, and had forgotten the details of how it was originated. So I asked ChatGPT, and it gave me this concise response:
.......................................

I seem to recall a story about NAET. The woman who founded it reacted to a carrot or something like that, did a NAET session, and then discovered she still had the carrot in her hand. I don't recall the details, it's all kind of fuzzy. Can you find that story?

ChatGPT said:​

Yes, you're recalling the origin story of Nambudripad's Allergy Elimination Techniques (NAET), developed by Dr. Devi Nambudripad. This technique emerged from a personal experience she had with a severe allergic reaction to carrots.naturemedicine.ca
Dr. Nambudripad, who suffered from numerous allergies and was limited to a diet of white rice and broccoli, once experienced a severe reaction after consuming a carrot. In response, she administered an acupuncture treatment on herself and then fell asleep. Upon waking, she felt unusually well and noticed that a piece of carrot had remained in contact with her skin during the treatment. She hypothesized that the presence of the allergen during the acupuncture session might have altered her body's response to it, leading to the development of NAET. Acupuncture Medical Practice
NAET combines principles from acupuncture, acupressure, chiropractic, and applied kinesiology. The method involves holding a sample of the allergen while undergoing specific treatments to reprogram the body's response to the substance.​
 

Dysfunkion

Senior Member
Messages
539
Hi @Dysfunkion -- Are you familiar with NAET? I've had good success with some NAET sessions many years ago, and had forgotten the details of how it was originated. So I asked ChatGPT, and it gave me this concise response:
.......................................

I seem to recall a story about NAET. The woman who founded it reacted to a carrot or something like that, did a NAET session, and then discovered she still had the carrot in her hand. I don't recall the details, it's all kind of fuzzy. Can you find that story?

ChatGPT said:​

Yes, you're recalling the origin story of Nambudripad's Allergy Elimination Techniques (NAET), developed by Dr. Devi Nambudripad. This technique emerged from a personal experience she had with a severe allergic reaction to carrots.naturemedicine.ca
Dr. Nambudripad, who suffered from numerous allergies and was limited to a diet of white rice and broccoli, once experienced a severe reaction after consuming a carrot. In response, she administered an acupuncture treatment on herself and then fell asleep. Upon waking, she felt unusually well and noticed that a piece of carrot had remained in contact with her skin during the treatment. She hypothesized that the presence of the allergen during the acupuncture session might have altered her body's response to it, leading to the development of NAET. Acupuncture Medical Practice
NAET combines principles from acupuncture, acupressure, chiropractic, and applied kinesiology. The method involves holding a sample of the allergen while undergoing specific treatments to reprogram the body's response to the substance.​

I have not nor have I played with anything acupuncture before, is there any room for anything to go wrong really with acupuncture? I was always scared of the whole puncture part of it. I might try this summer if it's super low risk just to say I have.
 

Wayne

Senior Member
Messages
4,680
Location
Ashland, Oregon
is there any room for anything to go wrong really with acupuncture?

Hi @Dysfunkion -- NAET doesn't use acupuncture. The founder of the technique uses "principles of acupuncture", but the main therapy is acupressure. As I recall, the acupressure is used exclusively along the length of the spine.

NAET uses a kit of viles, which have unique vibrational signatures. The one I responded the most negatively to was EMF energy. It was sort of hard to believe I could start out holding the vile in my hand, and have it make me woozy and significantly affect my balance. And then have it literally disappear after doing the acupressure along the spine.

I've been meaning to get back to doing this on myself, but just haven't gotten around to it. Given your sensitivity, I can't help but think there's a good chance NAET could be helpful for you. -- @Treeman I'm a bit concerned my posts on NAET might be off topic. I could delete them if you'd like, and send them to Dysfunction via PM.
 

ruben

Senior Member
Messages
368
As I have said before I believe in other posts, having got ill with glandular fever in 1972 and never recovered, I have tried many things and tried quite a few acupuncturist/herbalists. None did anything for me.
 
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