You appear quite able to draft a coherent post. Justin is frequently more than able to do so. If that is the entirety of what you are capable of doing, you aren't as helpless as you claim.
When did I "claim to be helpless"? Please supply a direct reference or retract your false allegation.
Write your story And if it isn't the story you're hearing from the CAA, enlist a few folks from this site (or somewhere else) to put together a web-page (or even ask Cort - I suspect that he'd be on board) and let those stories speak volumes to the CAA or anyone else that you feel doesn't get it. Think something along the lines of the AIDS quilt.
Why don't you do this with your complaints about the CDC, instead of telling other people what to do? Go make an AIDS quilt yourself.
This disease is hell and it wrecks lives; those of the patients as well as our families. I feel that we're we're on the verge of the larger population being very interested in knowing just how sick we've been and asking why our health agencies have been so indifferent and callous. If XMRV holds up, the population will need to know just how bad it has been and then they'll want to make sure that the same thing won;t happen to them (at least for a while)
You are preaching to the converted here
But I refuse to believe that the best that you or anyone else is capable of is sarcasm and snide destructive comments.
Again please stop making false allegations without providing references. Which "snide destructive comments" did I make on this thread?
We do ourselves a disservice when we go this route. We also sell our selves short when we say that we're incapable of more.
Save the patronizing comments for someone else please.