IACFSME 2016 conference agenda is up

[Yogi]

The MEA had someone at the tribunal. AfME did not.

Given the bed they share AFME will probably get the info first hand from the PACE investigators themselves.

 

[msf]

Wow, that´s quite a line-up. The only ones missing in my view are Naviaux, Davis, and Lipkin, although that is a big three to be missing.

 

[msf]

I see Hornig is going to be there but she isn´t going to be presenting anything.

 

[BurnA]

Wow, that´s quite a line-up. The only ones missing in my view are Naviaux, Davis, and Lipkin, although that is a big three to be missing.

I saw Davis' name in there.

 

[msf]

The question is, is it there though?

I´ve checked twice and failed to notice it, perhaps you might quote that part if you find it.

 

[BurnA]

The question is, is it there though?

I´ve checked twice and failed to notice it, perhaps you might quote that part if you find it.

Do a search for "Davis" and you'll see it.

Lunchtime session 2 on Friday.

 

[msf]

Well, I can´t find it on the cut and paste, so I will just take your word for it. Are you sure you have the right Davis though?

 

[mango]

Well, I can´t find it on the cut and paste, so I will just take your word for it. Are you sure you have the right Davis though?

My guess would be that it has been added recently. Check the website for the most recent version.

 

[justy]

Very interesting.

Any idea what KDM will be presenting? New research perhaps?

 

[Helen]

Any idea what KDM will be presenting? New research perhaps?

I don´t know more about it than what´s in the title, which is exciting enough for me. I guess we´ll see some study published soon.

 

[Gijs]

Maybe KDM will finally present his data for chronic Lyme in ME and his AB cure for CFS/ME patiënts.

 

[aimossy]

Does anyone know if there will be much reporting from the conference this year?

 

[Helen]

Maybe KDM will finally present his data for chronic Lyme in ME and his AB cure for CFS/ME patiënts.

As a patient of KDM I´m convinced that he has other facts to tell about than that.

 

[Gijs]

As a patient of KDM I´m convinced that he has other facts to tell about than that.

Doesn't he believe anymore in his chronic lyme hypothesis and AB cure? Or is he switching again?

 

[Helen]

Doesn't he believe anymore in his chronic lyme hypothesis and AB cure? Or is he switching again?

I don´t know what you mean by ' his chronic lyme hypothesis and AB cure'. I can´t see that he is 'switching'. Rather he is developing his treatments based on experiences and latest research; his own and others, in my opinion.

 

[msf]

Maybe KDM will finally present his data for chronic Lyme in ME and his AB cure for CFS/ME patiënts.

Maybe Gijs will present his paper on sarcasm.

JK.

 

[Bob]

Do a search for "Davis" and you'll see it.

Lunchtime session 2 on Friday.

I'm not sure if he is there actually, Burn. I can't see him, even with a search.

Edit: Actually ignore that. He is there but only on their updated webpage and not in the info in this thread...

Mitochondrial Dysfunction: A Potential Etiology for ME/CFS?

Moderator:
Jon D. Kaiser, MD, University of California Medical School, San Francisco

Speaker Panel:
Ron Davis, MD, Stanford University Medical School
Nancy Klimas, MD, Neuro Immune Institute, NOVA Southeastern
Dikoma Shungu, PhD, Departments of Radiology, Neurology and Neuroscience, Weill Cornell Medicine.

Mitochondrial dysfunction is an etiologic mechanism that may explain the multisystem range of symptoms experienced by CFS patients. Electron micrographs of muscle biopsies have revealed abnormal mitochondrial degeneration. Evidence of oxidative damage and increased activity of antioxidant enzymes have also been chemically detected in muscle specimens of CFS patients. The classic presentation for an illness manifesting mitochondrial dysfunction is one that involves multiple symptoms spanning many domains. These typically include fatigue, cognitive impairment and other brain-related challenges, muscle weakness, exercise intolerance, and gastrointestinal problems. The broad symptoms profile found in ME/CFS is consistent with this description of a mitochondrial dysfunction disease.

Each panelist will share their perspective on this topic for ten minutes, including an overview of their own investigations, to be followed by a Q&A session.

 

[Susanna D]

Will the presentations be filmed and made available on the Internet?

 

[Kati]

Will the presentations be filmed and made available on the Internet?

Hi @Susanna D typically IACFSME does not film their presentations. Hopefully some patients will attend and write reports here. Perhaps some will live tweet too.

 

[Susanna D]

Hi @Susanna D typically IACFSME does not film their presentations. Hopefully some patients will attend and write reports here. Perhaps some will live tweet too.

Ok, Thanks!