MartinK
Senior Member
- Messages
- 367
Hi guys, I would like to find out / find as many people as possible similar to me with these specific symptoms:
-severe ME/CFS with physical fatigue mainly
-extreme intolerance to heat
-easy to get PEM after muscle stimulation / massage / lying on a hard mat
-burning/inflammation feeling in muscles mainly around the spine, legs and pelvis-worsening after exertion
These are very specific symptoms for me that I believe are worth investigating. Of course I also have some more typical symptoms, mainly extreme muscle weakness and fatigue - I'm bedridden. Can anyone help me or let me know who has similar symptoms? We could try some things together in group and share experiences! 🙌🏻
I'm trying a lot of treatments and new things, I'm having some minor improvements at the moment.
Finding similar patients can help us a lot I think because it can more closely identify what helps our subgroup.
@Thebirdman333 is one of the similar ;-)
-severe ME/CFS with physical fatigue mainly
-extreme intolerance to heat
-easy to get PEM after muscle stimulation / massage / lying on a hard mat
-burning/inflammation feeling in muscles mainly around the spine, legs and pelvis-worsening after exertion
These are very specific symptoms for me that I believe are worth investigating. Of course I also have some more typical symptoms, mainly extreme muscle weakness and fatigue - I'm bedridden. Can anyone help me or let me know who has similar symptoms? We could try some things together in group and share experiences! 🙌🏻
I'm trying a lot of treatments and new things, I'm having some minor improvements at the moment.
Finding similar patients can help us a lot I think because it can more closely identify what helps our subgroup.
@Thebirdman333 is one of the similar ;-)