fresh...thanks
i was all happy thinking that once we get on the right drugs, everything would be ok ...but that isn't true.
i had the dumb idea that the cells infected with XMRV would natually die and the drugs would prevent new cells from being infected, so the numbers of infected cells would decrease over time and eventually, we would have less and less cells with XMRV.....so even the people who have had this for 20 years eventually wouldn't have to worry about leukemia or lymphoma.
but i didn't realize that the infected cells divide too and make more cells with XMRV.....
so i guess the earlier you start treatment the better.
i wonder how bad the situation for us long-term patients is....
i was all happy thinking that once we get on the right drugs, everything would be ok ...but that isn't true.
i had the dumb idea that the cells infected with XMRV would natually die and the drugs would prevent new cells from being infected, so the numbers of infected cells would decrease over time and eventually, we would have less and less cells with XMRV.....so even the people who have had this for 20 years eventually wouldn't have to worry about leukemia or lymphoma.
but i didn't realize that the infected cells divide too and make more cells with XMRV.....
so i guess the earlier you start treatment the better.
i wonder how bad the situation for us long-term patients is....
Even if XMRV is found absolutely to be the cause of CFS, it's going to take some time to find the right set of drugs for it -- but there's no reason, IMO, to think that long-term patients wouldn't experience much recovery once those drugs were found and treatments really began to work.