I need your first month/season/year of illness for research please?

[Jenny]

Would you please just tell me what year you got sick and what season of the year it was or as close as you can get. I'm doing some research to show to a couple of ID and research docs. Thanks all!

April 1982, Spring (UK).

 

[Hanna]

Sudden offset in end of June 1998 - beginning of summer (Northern hemisphere).

 

[tudiemoore]

June 1997-very sudden onset--2 days
Very bad for about 1 1/2 years, gradual improvement, then a 9 month remission--bad a lot of times since then but really up and down, better now but I don't count on it
Pennslyvania US

 

[meandthecat]

Third week of September 2005, a severe virus ' like being hit by a train' . 3yrs going down and 7 coming back, generally a downturn in the winter and a slight rise in the spring, more noticeable as the symptoms became less severe. South west England

 

[Cog71]

October 2009. Gold Coast, Australia. I live in Los Angeles but my husband was filming there so we went with him as I'd just given birth to our first child. Within a week of arriving I knew, looking back, that this was more than just post-natal discomfort.


Edit: What I meant to put across but didn't effectively was that I went from a very hot LA summer whilst heavily pregnant, to a place where temps were in the 90s and 100s from October thru Jan. I feel certain that heat was a factor.

 

[viggster]

July 8, 2012
sudden onset fever

 

[tudiemoore]

I lived in Pennsylvania when I became sick.
I live in southeast US now

 

[sorin]

I was living in Dublin, Ireland when I became suddenly ill in February 2010. I suppose it was during the Epidemic of swine flu 2009-2010 (https://en.wikipedia.org/wiki/2009_flu_pandemic)

 

[Mary]

West coast U.S. - Very slow onset - health first started to go south in spring 1985, and kept going south, and had first ME/CFS crash in fall 1998. And have been crashing like clockwork ever since, have low NK cells, etc., though no brain fog or pain. I don't recall any viral infection causing the initial decline.

 

[Tiger_Eyze]

Mid September (fall - in N. America) in 2004.

6 weeks after visiting Michigan and camping there - may have gotten lyme, but zero herx on doxy, Zithromax, Flagyl or clarithromycin.

Had a flu-like illness, but no vomiting, just numbness and weakness that moved up my legs. The acute episode resolved in a week, but it took 3 months for me to be able to jump or jog with any coordination and I've had worsening post-exertional fatigue since. I can force my way through a CPET bike test - my oxygen drops to 93%, my HR stays at 140. The doc told me - you are actually in good shape - you didn't slow down on the highest resistance, but your VO2 max is reduced and something is off with your HR and oxygen, but I can't put my finger in it.

PDK enzyme inhibition makes total sense, maybe the low O2 is from a touch of diaphragmatic weakness.

 

[Little Bluestem]

I came down with the infection that I blame for my ME/CFS on March 23, 1986. I sometimes wonder if I would have been OK if I had received enough antibiotic to avoid the rebound infection that hit March 31.

 

[MeSci]

I can only say for sure some time after (?) 16.3.94. I think I was going to the Job Club for quite a few months before the person in charge suggested that I might be too ill. More info on this page: http://forums.phoenixrising.me/inde...-and-results-of-1995-step-exercise-test.1650/

 

[me/cfs 27931]

July, Summer, 1978, Southern California.

Edit: Recently, I have become increasingly convinced I had milld ME/CFS back to 1969. However, the disease became much more serious following what was diagnosed as an unknown viral infection in July 1978.

 

[Countrygirl]

1972 late spring Oxford England. Started as a severe, undiagnosed infection, and encephalitis. Struggled on with what I would now call mild ME. Then in April 1982 in SW England suddenly severe overnight.

Over the years, I have heard of other students of the same age as me in Oxford who also developed ME and couldn't continue with their professions. Probably just coincidence, but just maybe 'something' was infecting all of us that made us prone to developing ME.

 

[mirshine]

May/June 2011, Summer in Ireland. Started with an unknown virus.

 

[erin]

Late January 2005, in UK, chicken pox: got the virus from my niece who lived in Germany.

 

[Jenny TipsforME]

January, winter, 1998 glandular fever which drifted into ME.

Also winter 2000 ME became disabling (unable to work/study) after ear infection

But major relapse hottest week of year July 2012 after tonsillitis and busy week (this might have been more POTS than ME).

 

[ladycatlover]

Hope I'm not too late to join in on this. I think this might be my first post here!

March 9th 1992 Liverpool, UK - sudden onset with what I thought was a mild virus at the time. Just chills and needing to sleep. Initially did manage a few days back at work, but felt dreadful. So my lovely GP signed me off sick, and I never returned to work (that's a story in itself!). Since then I've very gradually declined, to the extent that I'm at the severe end of moderate.

At the time I was working in a lab, culturing blood etc. I had Hep B course of vaccinations at start of this job, approx 4 years before I became ill. I have always wondered if this was one of the triggers of my illness, but this isn't the place to go into detail I guess.

 

[otherworldly]

august 26, 1995 new hampshire, usa

 

[unto]

May 1985 Italy,
tiredness / sleepiness sore throat / ears and long periods took away my voice (if I'm not careful I also removes the now) digestive disorders also strong ...
then 1 + 1/2 years after the onset of a very sore from head cold that it lasted months m'è
and now (such as sore throat and ears) .I keep an eye on
it all depends on when it encounters the virus.......not the season