edit: doh! it's advice not advise --can't edit the title
Hi all, this is my first time posting here. I've had CFS/ME for almost 5 years. This forum has been a great source of information, so I want to thank Cort for what he is doing. And I want to thank all the participants here --I've been lurking here forever, and I've learned a lot.
I do want to admit to one thing however: I am overwhelmed by the vast amount of information here at times, and by the sophistication and knowledge of the posters. I generally think of myself as relatively intelligent, but I have a lot of trouble understanding some of the information, maybe I just don't have the science background, but so many posters here are much more informed than me. It makes me feel that I've been negligent to learn, and/or in denial about my illness. Early on in my illness, I'd spend hours here, and I'd sometimes feel I was going down the rabbit hole and coming out the other end more scared than ever. This is in no way a criticism of this forum, just the reality of the illness.
I say all this in an attempt to explain why I am coming to you all, to ask for your advice. It's because I respect your knowledge, and feel in over my head about something that has come up --I've been given an amazing opportunity by a friend who has the financial resources to help send me almost anywhere I want to try for treatment. So, I want to ask you, if you had around $50,000 - $70,000 to try to get help, would you go for it? More importantly, who would you see,? What would you try? I know that treatment for CFS/ME is a long shot, but what would you do? Not an easy question to answer I know.
Thanks so much for reading this, and for any help you can provide.
Hi all, this is my first time posting here. I've had CFS/ME for almost 5 years. This forum has been a great source of information, so I want to thank Cort for what he is doing. And I want to thank all the participants here --I've been lurking here forever, and I've learned a lot.
I do want to admit to one thing however: I am overwhelmed by the vast amount of information here at times, and by the sophistication and knowledge of the posters. I generally think of myself as relatively intelligent, but I have a lot of trouble understanding some of the information, maybe I just don't have the science background, but so many posters here are much more informed than me. It makes me feel that I've been negligent to learn, and/or in denial about my illness. Early on in my illness, I'd spend hours here, and I'd sometimes feel I was going down the rabbit hole and coming out the other end more scared than ever. This is in no way a criticism of this forum, just the reality of the illness.
I say all this in an attempt to explain why I am coming to you all, to ask for your advice. It's because I respect your knowledge, and feel in over my head about something that has come up --I've been given an amazing opportunity by a friend who has the financial resources to help send me almost anywhere I want to try for treatment. So, I want to ask you, if you had around $50,000 - $70,000 to try to get help, would you go for it? More importantly, who would you see,? What would you try? I know that treatment for CFS/ME is a long shot, but what would you do? Not an easy question to answer I know.
Thanks so much for reading this, and for any help you can provide.