i need help with a crash

[Luxintenebrislucet]

I dont know if this is a crash or i have a viral infection or reactivation.
As you already know i live in Germany and do not have the possibility to go to a doctor to get properly tests ( assurance dont cover more than a few general markers) .
I feel totally exhausted since a few week, when i move i get a fever sensation, a inner burning sensation and i sweat, i dont have strenght in my hands not even to hold my phone
I am moderate and i depend 100 % on my own so this is starting to worry me.
I am atm partially homeless( staying at somebodies home ) and i had a lot of emotional stress searching for a flat ( wich its terrible difficult here in Germany for sick and unemployed)
Other reason could be i am starting to not tolerate my monthly IVIG ( for POTS and SFN ) . I get ivig in one day dose and this makes me crash for a week usually. I cant get them separate i 3 days as i would like and should,my hematologist said she is doing enough allowing me to have an off label treatment and 3 days would cost her more money so i dont want to insist , and lose this treatment who nobody here in Germany is getting off label.
I am starting to be very afraid whats happening to me , how can i recover quickly from this crasn ? i cant allow myself to lie in bed more days i need to find a place and take care of my burocracy. I do not want social workers as i had terrible experience with them, wanting to get me in a psychiatric clinic for my " somatic disease " called ME.

 

[JollyRoger]

Im so sorry for you, Loba!
Does the IVIG has any positive effect on you?
Does the side effects really outweight the benefits?
A cure, that is worse than the disease, makes no sense.

Do you have to pay the IVIG on your own?

I know the situation in Germany is the worst.
The only specialist in Bavaria and Austria i know (and who are not snake oil salesmen) are Dr.Bieger and Dr.Stigl but you have to pay for them.

Nevertheless, i hope your situation improves. Having this ailement AND being almost homeless is a horrible combination....

 

[Luxintenebrislucet]

It helped me with my sfn. I couldnt wear shoes anymore and have a blanquet over me. Not to speak about summer and my POTS.
But it didnt helped with ME and actually i think it made it worse. I dont know because the same period i got ivig ( already 2 years ) i was living with my ex psychopath narcisstic bf who shouted me almost everyday so all the street was listening to him and hit me when he was drunk. The stress i had to run away from him and after that being homeless maybe was the reason i am sicker than 2 years ago. Or maybe the ivig.
I dont pay on my own. I live from 400 euro. I get ivig for CIPD .

 

[Booble]

My goodness that is a lot.

I wonder if your body needs a rest.

I'm 100% not minimizing your physical disease when I say that maybe having a good psychiatric expert would actually be helpful in dealing with the stress of physical illness and everything else?

 

[Viala]

Sorry to hear about your situation Loba.
Is it possible to take a break from ivig for a couple of weeks? Just to see if you feel better. Is there any other treatment available that wouldn't make you crash?

 

[Kes]

Hi Loba, I'm really sorry to hear you're struggling. Hope things pick up for you soon and something decent turns up for you, homewise..