Hey everyone.
So I had a CT angiogram few months ago and what we found was Eagle Syndrome and compression and narrowing of both internal jugular veins (IJV).
I think this is the explanation of many of head symptoms I have, such as pressure, dizziness, facial pain, etc. Now I've been wondering if this compression has been the source of my CFS all along.
As I've posted before on the forum, my condition deteriorated severely in 2017, with my CFS being mild before that. I don't know if this deterioration was because I got the Eagle syndrome on top of CFS or if it was the Eagle Syndrome all along.
Interestingly, there are some scarce reports of IJV compression mimicing CFS, there is even one study where the patient was cured after surgery to relieve the compression. There is also another study that has a theory that ME/CFS is a result of a combination of two syndromes -> IJV compression + CSF leak, you can read it below:
https://www.frontiersin.org/articles/10.3389/fneur.2023.1127702/full
I don't know how, physiologically, compressed IJV can lead to the disabling fatigue we experience, but there's a few layman theories I have:
- Because, problems with outflow of blood creates pressure in the brain, it could be that this stimulates certain parts of it to treat this as an infection and then promotes a sickness response that makes you tired
- Because the blood can not flow out properly, this indirectly reduces the inflow, so that there is less fresh blood with oxygen / glucose getting in thus creating starvation of nutrients and a fatigued / slowed down state.
- Something else... ?
Anyway I hope I can find a surgeon who can help me with this (this won't be easy seems like it so far) and hopefully I could at least get to having mild CFS again, or maybe even a cure...
PS: If you are interested in more details about the Eagle Syndrome, here is a thread I made on another site:
https://forum.livingwitheagle.org/t...ands-etc-does-this-sound-like-eagles/14236/45
So I had a CT angiogram few months ago and what we found was Eagle Syndrome and compression and narrowing of both internal jugular veins (IJV).
I think this is the explanation of many of head symptoms I have, such as pressure, dizziness, facial pain, etc. Now I've been wondering if this compression has been the source of my CFS all along.
As I've posted before on the forum, my condition deteriorated severely in 2017, with my CFS being mild before that. I don't know if this deterioration was because I got the Eagle syndrome on top of CFS or if it was the Eagle Syndrome all along.
Interestingly, there are some scarce reports of IJV compression mimicing CFS, there is even one study where the patient was cured after surgery to relieve the compression. There is also another study that has a theory that ME/CFS is a result of a combination of two syndromes -> IJV compression + CSF leak, you can read it below:
https://www.frontiersin.org/articles/10.3389/fneur.2023.1127702/full
I don't know how, physiologically, compressed IJV can lead to the disabling fatigue we experience, but there's a few layman theories I have:
- Because, problems with outflow of blood creates pressure in the brain, it could be that this stimulates certain parts of it to treat this as an infection and then promotes a sickness response that makes you tired
- Because the blood can not flow out properly, this indirectly reduces the inflow, so that there is less fresh blood with oxygen / glucose getting in thus creating starvation of nutrients and a fatigued / slowed down state.
- Something else... ?
Anyway I hope I can find a surgeon who can help me with this (this won't be easy seems like it so far) and hopefully I could at least get to having mild CFS again, or maybe even a cure...
PS: If you are interested in more details about the Eagle Syndrome, here is a thread I made on another site:
https://forum.livingwitheagle.org/t...ands-etc-does-this-sound-like-eagles/14236/45