That would be great if you could get in with Dr Maitland - I hear good things about her on the MCAS boards.
Agreed and that would be awesome!
I have a mitral valve prolapse with regurgitation that may need operating on one day and I know I will never survive surgery, so I just try and think that I must carry on the best I can and hope to never need an operation. Can even get my teeth fixed currently.
@justy, I feel the exact same as you, that I would never survive a surgery. I currently have nine cavities and it is looking unlikely that I will be able to fill them b/c of the materials/dyes that the adhesives/bonding materials contain. I am starting to think I need to switch to a holistic dentist and this is my only chance.
Dr Afrin insists you cant be allergic to medicine - it is always fillers, but I disagree, my experience tells me I am allergis to some actual meds as I tolerate the same fillers in different meds.
I disagree with this as well and you absolutely can be allergic to a medication and not just to the fillers. This is why TMS (masto society) lists meds to avoid and meds that are generally tolerated including for dental work. It is just a guide and I actually am fine with some of the meds on the "No" list but I am allergic to others (like aspirin, NSAIDS, and several antibiotics).
I see a new MCAS Dr next week and am hoping she will be interested in my weird test results that my GP dismisses. My autoantibody test (ANA) Has gone up from a weak positive - 1:40 to 1:160, so still not very high, but only 3% of the population have this number and I am sick not healthy I also have consistently elevated IGM which my DR brushes off. Its all a big mess.
That is great and I hope it goes well with the new MCAS doc. I also have a positive ANA of 1:160 and consistently elevated IGM. I will be very curious to hear what you learn!
I don't have anything to say that will help you, but your experiences mirror a lot of my own and I KNOW what you are going through is real.
It is definitely real, and at least we can take comfort in knowing and validating that for each other.