Strawberry
Senior Member
- Messages
- 2,109
- Location
- Seattle, WA USA
Okay, he is my old allergy doctor, but I went back to him today after almost a decade. I found out he understands a good amount about MCAS and MCS, diagnosed me today with mild EDS, dermographism, and is talking about trying me on Cromolyn and Claritin (vs Zyrtec and Ketotifen). His nurse also walked me around the hospital campus for about two minutes monitoring my heart rate and oxygen. She knew how out of breath I was with little walking, and asked how I felt (which was muscles burning). So he knows how much the MCAS mixes in with the CFS.
When he heard all the problems I have and how many medications I take just to breathe, he had his nurse do the allergy testing even though I am on my medications. So now I am crawling the walls and trying to scratch my face off from way too much histamine, but I have local support!
I start shots next week. My CFS didn't improve while on shots before, but I was much more functional back then. If my allergies and MCAS/MCS can improve, maybe I can heal a bit and gain back 5%.
And I have a LOCAL doc that UNDERSTANDS MCAS! If I could do a little gig, I would do that one where you click your heels to the side.
When he heard all the problems I have and how many medications I take just to breathe, he had his nurse do the allergy testing even though I am on my medications. So now I am crawling the walls and trying to scratch my face off from way too much histamine, but I have local support!
I start shots next week. My CFS didn't improve while on shots before, but I was much more functional back then. If my allergies and MCAS/MCS can improve, maybe I can heal a bit and gain back 5%.
And I have a LOCAL doc that UNDERSTANDS MCAS! If I could do a little gig, I would do that one where you click your heels to the side.