@Rebecca2z -I can't believe you went through all of that and stuck it out with IVIG. I was better before the IVIG. I was like you. I had hives and a rash everywhere. Like you, all I wanted to do was sleep. I would read these posts of people feeling energized and I couldn't get out of bed to go to the bathroom. That is not like me. At all. When my blood tests came out nutso, I went to an immunologist who used to be the head CVID doctor in Philadelphia. He was a spokesperson for CVID and he was the one who pulled me off it. He saw the rash, the bloodwork, etc and was like...no, this shouldn't be doing this. You should feel somewhat better not worse. Igg made me so depressed. I felt delirious on it. Mental. I would react to everything and sit in bed for hours and cry. My pain went through the roof on it.
Anyway, my IGG levels are in the 700's. I failed the vaccine challenge, but I have not had a major infection in awhile. Since last June. I had an infection in December but it was tolerable.
He is actually more concerned because my lympocytes are so low. I have idiopathic lymphopenia. He is worried about that. I used to live in San Francisco and I would go to a hematologist at Stanford and she was upset about my lymphocytes years ago.
Since by the grace of God I have not had a major infection, I am to stay off of it for now. Maybe that will have to change, but honestly, I am so scared of doing it again. If I have that kind of fatigue, migraines and pain...the pain...and "psycho" like effect....just shoot me. I will take the infections! I think it's great though, the new way. We had talked of doing it every day at one point instead of just once a month. That whole month I would be sick.
I know about the aseptic meningitis because many have that from IVIG.
Anyway, to you staying better and getting back to a life! I will be following this and please keep us posted.