Hi again Jody,
I'm "talking" to anyone who's interested (or to all of you).
I've just spent quite some time trying to jump in & out of this site & the various sections. (I have a bit of spare time this afternoon).
Or am I just technology challenged?
Actually, I'm getting a headache with all the intense concentration of trying to write & work at the same time.
Just shows I'm much better since 2004 (when I was only well for the first 3 weeks in April in the whole year). I can now process several actions at once, but I have to mentally process much slower than 20 years ago. Sometimes, I stop in mid sentence because I can't remember what I started to say. And my internet posts can go all over the place as my thought processes jump from one subject to another.
You're correct with the "sunglasses" thing, Jody.
And I was also found to be low in vitamin D in 2006, so have to take a vitamin D supplement. I am very, very fair (for an Australian) & get sunburnt in around 10 minutes exposure to sun. I have a 15 minute walk to/from work each day which is absolutely perfect exercise for me this year. I tend to wear long sleeves (even when it was 46degrees back in February of this year in Melbourne & we had the horrific bush fires) & try to walk on the shady side of the street. Both my parents have had numberous skin cancers (one malignant), my sister-in-law had a melanoma removed & then later lymph glands in her groin when cancer reappeared. I could go on about cancer which has affected/killed several friends, family & work colleagues - Aunt, cousin, best friend's father, both her husband's parents, about 7-8 staff here where I work...........
So, you see sunglasses & covering clothes are important to me.
They even make sunglasses for babies & toddlers. Not sure that I agree with Toddlers & Babies wearing them! I think they should be well covered & out of the sun anyway. Too easy to get heatstroke here in the summer. And many people just flake out from pure dehydration. People don't drink enough water (in this consumer society of fizzy, caffiene and guarana laced soft drinks). The hole in the ozone layer over this part of Australia has a significant impact on our health.
Was recently reading some interesting new research about Vit D and cancer.
And you probably already know about the connection between low vitamin D and muscle weakness/pain. So it seems my Endocrinologist's request for me to take Vitamin D (recent tests revealed it's working well) may have a positive effect on my FM pain.
So perhaps CFS/FM sufferers might consider having their vitamin D levels checked. Simple. Is it a possibility? Increasing your levels (if low) might reduce some lethergy & muscle pain?
I have designed a regime of diet, vitamins/supplements which I will open a blog about (if I can find the time at, or after work). For those of you (like me) who are financially challenged & need the cheapest, easiest treatment possible. You might like to read some ideas on Food as Medicine.
After all you've got to eat.
I also need a SIMPLE set of guidelines - I can't remember what/how to do things beyond work. I have my vitamins/calcium/salmon oil etc set up on a tray so I remember to take them. How about all of you fellow sufferers? It seems like I can remember 20 things at work, but give me one thing to remember to do at home & my brain goes completely blank. This seems to be some magic trick, my brain has aquired to keep my job to survive financially. There is some sub-conscious process which lurks beneath the surface. But the trick falls apart when I try to remember to post a letter on the way home from work, or walk out to the kitchen to write an item on the weekly shopping list.
It's actually quite funny when it takes 3 hours & several walks from the lounge to the kitchen to remember to write "apples" on a shopping list.
(But I can do a complex account reconciliation at work - figure that one out. Like I said, it's a magic trick my brain has learnt since 2004).
You don't need the latest scientific research or clinical trials to try a change in diet. You don't need a dictionary to understand medical terminology. You just need an open mind & a willingness to try some simple dietary changes. Some of them stem from hours of poring through diets of the longest living inhabitants on earth, the paleo diet, dairy/grain free, acid/alkaline balance, food proven to aggravate pain or inflammation, plus a summary of top 20 foods high in anti-oxidants & immune enhancing properties recommended by all the top nutritionists in the world - living or dead. I even pored over a few theories of Hippocrates - a translation of his work is online. It took me 4 months to summarise every bit of information I read on the internet or from my health/psychology books on my bookshelf & then try to sort it into a simple set of guidelines to try on an A4 sheet of paper. (I photocopy it at work sometimes to take shopping). It has a few lists of foods in descending order laid out into a few columns (with some do's & don'ts to remember on the righ hand side of the page.
In exactly 2 months I dropped my high cholesterol dramatically, dropped my high blood sugar, raised my low potassium, increased my energy, clarity of thought, & regained alot of my efficiency at work (you notice I said "at work", I don't do much outside work).
Earlier this year, the cardiologist recommended either drugs or surgery to rectify my heart arrythmia which was threatening to make me pass out 7-8 times a day. I said give me a couple of months to think about it - I don't want any more drugs.
These episodes seem to have disappeared completely.
Co-incidence? Low potassium causes heart arrythmia (amongst other things). Can a banana, 2-3 avocados a week & a handful of organic raisins really delete the need for prescription drugs/minor heart surgery?
I don't know, but I'm still eating these foods on the off chance that this has made the difference.
I admit to NOT sticking to my dietary regime 100% - those free chocolate biscuits at work are a temptation.
Food as Medicine is my particular interest & has been for over 25 years - it's coming in handy now that I have chronic ill health (& injuries - I've had several bad falls in recent years). Thought I was clumsy, but it might be just lack of restful sleep made me a little unco-ordinated. Having said that, my fatigue is a hundred times better than 2004. I could barely walk to work then, & how I did my job is a truly miraculous feat of mind power.
Diet is my key & mainstary to being the best I can at the present moment. Haven't got the money for Specialists & lots of Drugs. Haven't got the memory to remember a set of exercises. Write it down, you may well say, but one has to remember to look at the piece of paper on the fridge.
I put a note on my front door reminding me to pick up my neighbours newpaper out of her box while she was away for a few days. It took me 3 trips - reading the note & walking to the letter box (forgetting what I was there for) before I remembered to take in her newspaper.
No I haven't got Alzeimers. (By the way, new reserch has shown a link between vitamin D & Alzeimers. I seem to remember reading somewhere about some clinical trials).
The mind/body connection is another interest. And I've been reading about Buddhist philosophy (Tibetan) & practising different breathing techniques for some time now.
(Back on the discussion subject now) I find closing my eyes & 5 minutes of a slow breathing technique helps the irritation of light & sound.
I spent 1 1/2 hours typing after work one night last week with the exact details for this breathing technique for Cort (to try) for his racing thought patterns (?). Can't remember what Cort said about his mind (now). When I went to post it to the site, I lost the lot. Nearly burst into tears out of frustration.
I sorry to diverge from the subject, but as I can't navigate this site very well, I may as well keep typing. I aso have a basic 12mths certificate in Herbal Medicine, used to have a large prolific herb garden in my parent's backyard (before they moved into a Retirement Village some 15 years ago) a full certificate in Aromatherapy & Massage......and thousands of hours in research & reading in alternative therapies as each health problem as it has arisen over recent years.
A little reflexology can go a long way to ease some aches & pains. I only did a day course during the year I studied herbal medicine, but if you get a reflexology map of your foot, try firmly pushing & rubbing the corresponding point under the sole of your foot & you may notice the effect on your tender point or painful spot on the other part of your body.
You don't need to be qualified or an expert - anyone can do it. If you've chosen the correct reflexology spot on your foot, you will feel a sort of carressing/tingling/tickling? sensation underneath the skin of your painful area.
You might like to split this post & throw some into the appropriate discussion -feel free to edit.
PS I will have to find some money for a computer at home..........not enough time at work. It's 6.10pm & dark outside the office. I normally finish at 4.30pm!)