I wanted to share my journey with how I figured out how to manage Occipital Neuralgia and Atypical Trigeminal Neuralgia. This post also leads to Under Methylation and serotonin. I am 60 year old male. This is a terrible problem to have. I wonder what percentage of ME/CFIDS people have these problems.
I've had well over 120+ symptoms but these problem has been the worst of the bunch. I have slowly whittled them down. I hope someone can be helped with this post. Even when the information is available somewhere out there, people don't always find it so one more place helps.
I really had to diagnose this myself since there are very few good doctors and most dispense toxic treatments. I put "migraine" in the title because for a very long time I thought I had a migraine problem over the right eye. It wasn't until I had tried all the natural migraine remedies for migraine that I went to a cervical chiropractor who gave me a little relief. I realize that my neck muscle tightened and that would worsen the pain. Once I got that neck muscle to relax, I was able to trace the pain as coming from the cervical spine area at C2-C3. I also figured out how to relax my own neck muscle so chiropractor wasn't needed. Chiropractor claimed more treatments could cure the problem but I wasn't buying it.
To buy time until I could find something else especially to help deep pain during sleep, I used a Terminator 2 zapper. I'd place the zapper on my chest during the night by putting it on inside of t shirt and it would stay in place. It worked well enough. I used it during day time also. A zapper should be part of any medical kit. It is a one time relatively small cost and running it entire month with batteries cost a couple dollars. From there I started to focus on Restless Leg Syndrome because I was feeling deathly. The magnesium just wasn't working enough anymore.
This is how I cured my Occipital Neuralgia. I used a combination of Antioxidant+NMDA antagonist+Diet+No B Complex/B12. I came across this solution by the way of trying to solve a worsening restless leg syndrome. I came across a website called www.rlcure.com which put together many of the pieces of the problem. I had some awareness of the pieces but not how they interconnected. Restless leg syndrome is a sign that your body is aflame with chronic inflammation. I thought I had a decent enough diet. I used a bunch of antioxidants to put out the fire. I was already using some antioxidants but not enough. I also used PharmaGABA / L-Theanine and Magtein to enhance brain GABA levels in NMDA. I ate a relatively healthy diet but recognized how certain glutamine foods would make symptoms worse.
The antioxidants I used:
This cured both my Occipital Neuralgia and RLS. I used to get a severe headache when I took MSM but not anymore. I thought a while back that the ON was caused primarily by shingles.
Solving these problems enabled me to see that I had something called Atypical Trigeminal Neuralgia (ATN). It is different than plain TN in that pain is chronic as opposed to episodic and never got sudden electroshock pain. My pain is located on right side around maxillary and bottom eye. It blended in with the migraine like pain over eye from occipital so hard to distinguish. I thought the pain may have been due to dry sinus or dry eye problem but through very exhaustive process of exclusion, I was able to diagnose it as ATN. I used MaquiBright supplement to address dry eye so I knew that wasn't problem. I tried seeing if there were gland blockages of some kind but they all ended up in dead end. I focused my attention on trigeminal neuralgia area. I had never seen ATN mentioned anywhere until relatively recently.
I primarily use Taurine and Magtein along with being aware of glutamate foods I eat to control glutamate overload in order to manage the ATN. I minimize the use of sugar also. I did not take any coenzyme B-Complex or B12 during this time because I found I am an under methylator. I did not realize this was important in figuring out how to cure the problem at the time since I found it out later.
Just some more detail: I take 1500 mg of taurine in the morning then wait 20 minutes and take 1 magtein capsule. I do the same before going to bed.
I take them 20 minutes apart in case they may compete with each other. I am not entirely sure but I want to be safe and make sure the taurine gets absorbed.
I do not take PharmaGABA or L-Theanine because I think it seems to neutralize the protective effect of the taurine.
I found this quote some where which may validate my logic - "They found that the GABA antagonist abolished the protective effects of taurine, confirming that the taurine protection was due to its activation of GABA receptors."
After I got this far, I started adding B12 and B complex but realized it was making me "wired" after 3 or 4 days. So this led me to the under methylation subject. I did have the genetic testing for methylation done about 2 years ago but it came out negative. Most of the talk at the time was dominated by over methylation. I did find out that some B vitamin were making me worse and wondered for years why that was so.
I read that taking SAMe was the quickest way to resolve the under methylation so I took 800mg of it yesterday. I feel a little sluggish today but the feeling wired has seemed to mostly gone away I think.
I want to take more B12 methycoblamin and B-complex but it can aggravate it so I need to figure that out. Phosphytidylcholine aggravates symptoms so can't take that. Any choline supplement aggravates things it seems. Blaylock recommends these for the typical trigeminal neuralgia. In order to cure ATN, I need to be able to get the methylation cycle in me working.
I have also come to realize a little later that my adverse reaction to b complex vitamins and choline are due to what people call UNDER METHYLATION. I think in order to cure the ATN completely, I need to be able to add the b complex. This under methylation greatly complicated finding a solution to the ON and ATN.
I also come to realize I am likely low on serotonin. I found this out when I was using Cissue Quadrangulris for rotator tendinosis (exercising rotator muscle is the real cure) and found I slept better. I tried taking 5HTP before but reacted with more pain. I read 5HTP not good to take long term. I tried SSRI's and result was mixed.
So thru this tangled web of problems, I am down to figuring out how to manage the under methylation along with serotonin.
Hope this helps someone
I've had well over 120+ symptoms but these problem has been the worst of the bunch. I have slowly whittled them down. I hope someone can be helped with this post. Even when the information is available somewhere out there, people don't always find it so one more place helps.
I really had to diagnose this myself since there are very few good doctors and most dispense toxic treatments. I put "migraine" in the title because for a very long time I thought I had a migraine problem over the right eye. It wasn't until I had tried all the natural migraine remedies for migraine that I went to a cervical chiropractor who gave me a little relief. I realize that my neck muscle tightened and that would worsen the pain. Once I got that neck muscle to relax, I was able to trace the pain as coming from the cervical spine area at C2-C3. I also figured out how to relax my own neck muscle so chiropractor wasn't needed. Chiropractor claimed more treatments could cure the problem but I wasn't buying it.
To buy time until I could find something else especially to help deep pain during sleep, I used a Terminator 2 zapper. I'd place the zapper on my chest during the night by putting it on inside of t shirt and it would stay in place. It worked well enough. I used it during day time also. A zapper should be part of any medical kit. It is a one time relatively small cost and running it entire month with batteries cost a couple dollars. From there I started to focus on Restless Leg Syndrome because I was feeling deathly. The magnesium just wasn't working enough anymore.
This is how I cured my Occipital Neuralgia. I used a combination of Antioxidant+NMDA antagonist+Diet+No B Complex/B12. I came across this solution by the way of trying to solve a worsening restless leg syndrome. I came across a website called www.rlcure.com which put together many of the pieces of the problem. I had some awareness of the pieces but not how they interconnected. Restless leg syndrome is a sign that your body is aflame with chronic inflammation. I thought I had a decent enough diet. I used a bunch of antioxidants to put out the fire. I was already using some antioxidants but not enough. I also used PharmaGABA / L-Theanine and Magtein to enhance brain GABA levels in NMDA. I ate a relatively healthy diet but recognized how certain glutamine foods would make symptoms worse.
The antioxidants I used:
- curcumin BCM-95 (fat soluble)
- grape seed extract (water soluble)
- astaxanthin (fat soluble) (i had always taken this)
- Pterostilbene (water soluble) (resveratol is obsoleted by Pterosrilibene)
- HiTart cherry (water soluble)
- Purple Defense (water soluble)
- blueberry extract (water soluble)
This cured both my Occipital Neuralgia and RLS. I used to get a severe headache when I took MSM but not anymore. I thought a while back that the ON was caused primarily by shingles.
Solving these problems enabled me to see that I had something called Atypical Trigeminal Neuralgia (ATN). It is different than plain TN in that pain is chronic as opposed to episodic and never got sudden electroshock pain. My pain is located on right side around maxillary and bottom eye. It blended in with the migraine like pain over eye from occipital so hard to distinguish. I thought the pain may have been due to dry sinus or dry eye problem but through very exhaustive process of exclusion, I was able to diagnose it as ATN. I used MaquiBright supplement to address dry eye so I knew that wasn't problem. I tried seeing if there were gland blockages of some kind but they all ended up in dead end. I focused my attention on trigeminal neuralgia area. I had never seen ATN mentioned anywhere until relatively recently.
I primarily use Taurine and Magtein along with being aware of glutamate foods I eat to control glutamate overload in order to manage the ATN. I minimize the use of sugar also. I did not take any coenzyme B-Complex or B12 during this time because I found I am an under methylator. I did not realize this was important in figuring out how to cure the problem at the time since I found it out later.
Just some more detail: I take 1500 mg of taurine in the morning then wait 20 minutes and take 1 magtein capsule. I do the same before going to bed.
I take them 20 minutes apart in case they may compete with each other. I am not entirely sure but I want to be safe and make sure the taurine gets absorbed.
I do not take PharmaGABA or L-Theanine because I think it seems to neutralize the protective effect of the taurine.
I found this quote some where which may validate my logic - "They found that the GABA antagonist abolished the protective effects of taurine, confirming that the taurine protection was due to its activation of GABA receptors."
After I got this far, I started adding B12 and B complex but realized it was making me "wired" after 3 or 4 days. So this led me to the under methylation subject. I did have the genetic testing for methylation done about 2 years ago but it came out negative. Most of the talk at the time was dominated by over methylation. I did find out that some B vitamin were making me worse and wondered for years why that was so.
I read that taking SAMe was the quickest way to resolve the under methylation so I took 800mg of it yesterday. I feel a little sluggish today but the feeling wired has seemed to mostly gone away I think.
I want to take more B12 methycoblamin and B-complex but it can aggravate it so I need to figure that out. Phosphytidylcholine aggravates symptoms so can't take that. Any choline supplement aggravates things it seems. Blaylock recommends these for the typical trigeminal neuralgia. In order to cure ATN, I need to be able to get the methylation cycle in me working.
I have also come to realize a little later that my adverse reaction to b complex vitamins and choline are due to what people call UNDER METHYLATION. I think in order to cure the ATN completely, I need to be able to add the b complex. This under methylation greatly complicated finding a solution to the ON and ATN.
I also come to realize I am likely low on serotonin. I found this out when I was using Cissue Quadrangulris for rotator tendinosis (exercising rotator muscle is the real cure) and found I slept better. I tried taking 5HTP before but reacted with more pain. I read 5HTP not good to take long term. I tried SSRI's and result was mixed.
So thru this tangled web of problems, I am down to figuring out how to manage the under methylation along with serotonin.
Hope this helps someone
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