I have had ME/CFS around 9 years now....with a relapse 4 years ago that worsened it from being mild and able to work to a worsening of symptoms and unable to work. I have done quite well in working through the symptoms especially the digestive ones which were very difficult. I have to 'manage' them now via a change in diet, but if I do that then my system functions quite well (basically Paleo now with lots of veg as well as meat/fish).
I have also addressed my thyroid issues as well as I can and I think that is probably as good as it will be (using T3 only instead of T4). Also done my best to help adrenal problems too. I have OK Ferritin, vit D, and take useful vits/minerals. MY energy is better in between cold viruses, but there are a lot of them.
The one symptom that hangs around and I realise has been there for longer than 9 years is my poor immune system. I don't have copies of old 'blood counts' which is pretty well all the NHS will do. Recent blood counts show low platelets and borderline low for things like lymphocytes, monocytes, total white cell count, so clearly things are not right.
Privately I have paid for some tests that are supposed to point to immune problems and why.....Lymphocyte sensitivity test, and DNA Adducts test. I had that done a year ago and just redone. However I have done my best to address those things it threw up and yet I still am continually fighting cold viruses.
Just wondering if others have this problem and what they do about it? I use Oil of Oregano and Echinacea at the moment, but ideally my immune system needs to be strengthened long term so I don't get ill as much, but how? and what works?
I have also addressed my thyroid issues as well as I can and I think that is probably as good as it will be (using T3 only instead of T4). Also done my best to help adrenal problems too. I have OK Ferritin, vit D, and take useful vits/minerals. MY energy is better in between cold viruses, but there are a lot of them.
The one symptom that hangs around and I realise has been there for longer than 9 years is my poor immune system. I don't have copies of old 'blood counts' which is pretty well all the NHS will do. Recent blood counts show low platelets and borderline low for things like lymphocytes, monocytes, total white cell count, so clearly things are not right.
Privately I have paid for some tests that are supposed to point to immune problems and why.....Lymphocyte sensitivity test, and DNA Adducts test. I had that done a year ago and just redone. However I have done my best to address those things it threw up and yet I still am continually fighting cold viruses.
Just wondering if others have this problem and what they do about it? I use Oil of Oregano and Echinacea at the moment, but ideally my immune system needs to be strengthened long term so I don't get ill as much, but how? and what works?