- Messages
- 26
Hello everyone,
I hope you are well, given the circumstances.
I have a few questions about recovery. Basically, I have now had CFS for over a year. I was diagnosed in June 2015 with a 'mild' case. My day to day life is still greatly impacted. I have pretty much no social life now, because socialising is too exhausting. I am not housebound, but i tend to stay at home pretty much all the time, because i am very cautious of triggering a worsening in the severity of my symptoms. However, I am becoming frustrated with such a sedentary and boring lifestyle. I am a previously fit and healthy 20 year old male. I want to start actively trying to get my life back, instead of waiting until something magical happens. I am quitting my job (hospitality) and tomorrow is my last shift. I have dropped out of university for the time being, hoping to be back studying next year (probably in June). My question is - what now?
Basically, I now have no responsiblities. I have a few months with nothing to do. I am moving home with my parents in February. So i can now dedicate every ounce of my being into recovery, a prospect that I am very excited about. So, how should I go about it? The specialist I saw in June (who diagnosed me) said that I should begin to exercise daily. Starting with a small bit, and very slowly increasing what I can do. My GP seconded this notion. What do you guys think? I can deal with a few days of feeling worse than usual following exercise, if it is going to have positive effects long-term. I am getting a bit worried that I am spending too much time lying down, inside. I feel as though I need fresh air and a bit of movement. But of course, I am terrified of pushing too hard and triggering a severe relapse or something.
So basically, what should I do with all this time to recover?
Exercise lightly?
Should I try and lie down less? At this stage, I feel as though I want to lie down, but I don't have to.
Is it worth investigating naturopaths or homeopaths or anything??
PS- this info may be useful when answering: My main symptoms are fatigue, and strange feelings of pressure/swimming/throbbing etc in my head. I also occasionally get headaches and gut problems. I have trouble with cognition, especially with numbers. I have no aches or anything like that. I have hardly any PEM. I can have a stressful shift at work, and then feel no worse the next few days, which i Know is odd for CFS.
Thank you so so so so much for your help. I hope everybody can find something to smile about today. For me, the thought of getting better keeps me going, I cannot believe how much I took for granted before, and I can't wait to experience life after coming through this CFS journey.
I hope you are well, given the circumstances.
I have a few questions about recovery. Basically, I have now had CFS for over a year. I was diagnosed in June 2015 with a 'mild' case. My day to day life is still greatly impacted. I have pretty much no social life now, because socialising is too exhausting. I am not housebound, but i tend to stay at home pretty much all the time, because i am very cautious of triggering a worsening in the severity of my symptoms. However, I am becoming frustrated with such a sedentary and boring lifestyle. I am a previously fit and healthy 20 year old male. I want to start actively trying to get my life back, instead of waiting until something magical happens. I am quitting my job (hospitality) and tomorrow is my last shift. I have dropped out of university for the time being, hoping to be back studying next year (probably in June). My question is - what now?
Basically, I now have no responsiblities. I have a few months with nothing to do. I am moving home with my parents in February. So i can now dedicate every ounce of my being into recovery, a prospect that I am very excited about. So, how should I go about it? The specialist I saw in June (who diagnosed me) said that I should begin to exercise daily. Starting with a small bit, and very slowly increasing what I can do. My GP seconded this notion. What do you guys think? I can deal with a few days of feeling worse than usual following exercise, if it is going to have positive effects long-term. I am getting a bit worried that I am spending too much time lying down, inside. I feel as though I need fresh air and a bit of movement. But of course, I am terrified of pushing too hard and triggering a severe relapse or something.
So basically, what should I do with all this time to recover?
Exercise lightly?
Should I try and lie down less? At this stage, I feel as though I want to lie down, but I don't have to.
Is it worth investigating naturopaths or homeopaths or anything??
PS- this info may be useful when answering: My main symptoms are fatigue, and strange feelings of pressure/swimming/throbbing etc in my head. I also occasionally get headaches and gut problems. I have trouble with cognition, especially with numbers. I have no aches or anything like that. I have hardly any PEM. I can have a stressful shift at work, and then feel no worse the next few days, which i Know is odd for CFS.
Thank you so so so so much for your help. I hope everybody can find something to smile about today. For me, the thought of getting better keeps me going, I cannot believe how much I took for granted before, and I can't wait to experience life after coming through this CFS journey.