bertiedog
Senior Member
- Messages
- 1,743
- Location
- South East England, UK
I posted this on my other thread about how disappointed I was having PEM after a good day.
Actually now I have the evidence that it is nothing to do with ME/CFS but it is to do with the withdrawal of the thyroxine I have taken for years in addition to the NDT because now I have my blood tests results having been off the 25 mcg thyroxine for 6 weeks as instructed by my Endo.
TSH - 0.01 (lower than last time)
Free T4 - 8.32 range (12-22), 6 weeks ago it was 15
Free T3 - 4.93 range (3.1-6.8)
TPO antibodies over the range at 44, top of range was 34
Thyroglobulin antibodies ok at 32.4, range >115
So I was right all along, it was a disaster for me stopping the bit of extra T4, I did miss it from the 2nd day and have ended up with regular crashes on my walks, daily severe migraines and a basilar migraine which I haven't had for years. Oh yes a nasty virus too! I am now on Lyrica to help with the daily horrendous migraines.
This is what you get if you listen to traditional Endocrinologists on our NHS. They go by blood tests and what your height, weight is and then work out what you should be taking. This is complete GARBAGE, we are individuals and have individual needs. By listening to what the Endo told me I feel like have lost 3/4 of the health gains I have made over the years and wonder how long it is going to take to get them back.
To say I am LIVID is putting it mildly!
Pam
Actually now I have the evidence that it is nothing to do with ME/CFS but it is to do with the withdrawal of the thyroxine I have taken for years in addition to the NDT because now I have my blood tests results having been off the 25 mcg thyroxine for 6 weeks as instructed by my Endo.
TSH - 0.01 (lower than last time)
Free T4 - 8.32 range (12-22), 6 weeks ago it was 15
Free T3 - 4.93 range (3.1-6.8)
TPO antibodies over the range at 44, top of range was 34
Thyroglobulin antibodies ok at 32.4, range >115
So I was right all along, it was a disaster for me stopping the bit of extra T4, I did miss it from the 2nd day and have ended up with regular crashes on my walks, daily severe migraines and a basilar migraine which I haven't had for years. Oh yes a nasty virus too! I am now on Lyrica to help with the daily horrendous migraines.
This is what you get if you listen to traditional Endocrinologists on our NHS. They go by blood tests and what your height, weight is and then work out what you should be taking. This is complete GARBAGE, we are individuals and have individual needs. By listening to what the Endo told me I feel like have lost 3/4 of the health gains I have made over the years and wonder how long it is going to take to get them back.
To say I am LIVID is putting it mildly!
Pam