Telling whether Dysautomnia vs Low blood volume is causing POTS is hard work and the cause of a lot of debate, most doctors assume it's always one of the other.
Also Aldosterone (anti-urination hormone) is made either from Cortisol or the same precusrors (two methods). Hence low Cortisol can equal low Aldosterone = cause of POTS = cause of further problems.
Which cortisol test (time of day) was not low, and was it high or normal? Has any proper investigation been done into why you are producing so little Cortisol? Has Aldosterone been checked?
The aggression that comes with Hypoclyemia is caused by Adrenalin and/or Cortisol production when the body tries to correct the problem not by the hypo itself. If you are producing far too little Cortisol and Aldosterone, your body may be producing masses of Adrenaline to compensate (mine does) thus causing your rages.
The insulin spikes with sugar are caused in the bowels not the blood stream, if you dissolve it under your tongue, you avoid that problem. Following the teaspoon of sugar with something solid (cereal with bran for example) will help take pressure off your adrenals. The repeat as necessary also matters here, just keep on the sweet stuff until blood sugar settles, then follow up with the stodgy stuff. If you feel like hell with all carbohydrates that could be your SOD function.
Give me as much data as you can about your BP etc etc... and let's see if we can't sort this out.
I had 24hr cortisol testing done by urine (one collects it over 24hrs and then its tested), 3 times now.
1st time result was 46 (normal range is 50-350) . I had it retested one mth later cause doctor told me it was low cause I wasnt exercising.. so I exercised for the few days before the next test. .. I was in agony.. and had it retested
2nd time result was 51 (normal 50-350).. so yeah it was JUST then in normal range.. it hardly increased at all.
A third time.. in another year... I had it done it was out of range again (I didnt exercise or cause myself bad pain that time).
Interestingly.. my blood cortisol tests (which the doctors would only take in the morning).. is mid normal range. So this must mean that my cortisol must very severely ditch at other times other then the morning to get the out of range 24hr results.
No investigation was done on why I have abnormal 24hr urine cortisol.
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My Aldosterone level I dont know how that is. What kind of test is that tested by?
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, your body may be producing masses of Adrenaline to compensate (mine does)
Yeah.. I have out of range high noradrenaline levels. They actually threw out 3 of my adrenaline or noradrenaline tests as the lab didnt believe the results and said it must be a test error (2 different labs done this!). Yeah right.. 3 times straight at 2 different labs .. there is a test error. I dont believe it. I think my results were just so wacked out they couldnt believe they were true. At least the fourth test I did get results back showing it was above normal range.
Thanks I've never thought before how it all could be triggering off my adrenaline and hence huge mood swing with a diet breach. It would make sense that someone with crazily high unbelievable adrenaline levels at times would have a major mood swing during a huge spike.
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The insulin spikes with sugar are caused in the bowels not the blood stream, if you dissolve it under your tongue, you avoid that problem. Following the teaspoon of sugar with something solid (cereal with bran for example),
I can get a bad reaction to it in only 15-20mins..so it wouldnt be in my bowels by then. I very clearly reacted to chickpeas.. I had a bowl of them after I didnt realise they were high in carb. I ended up smashing my boyfriends car window about 20 mins after I ate them, my reaction to those was crazy.. I went off for no reason at all except for the carbs. (Unless Im allergic to them?? Im going for allergy testing next week). But I also get sick that fast after other diet breaches eg if I have 3 pieces of KFC chicken.. Im not well, I assume due to the carbs in the batter.
Give me as much data as you can about your BP etc etc... and let's see if we can't sort this out.
My BP all my life was very low eg I'd fall down if I stood too fast. 80/60 when I first got ME and before or lower. It was very low for the first few years of the ME at least.. (I then had a ME/CFS remission.. somewhere after this remission when I got ME back.. it all changed.. and somewhere among this I also developed POTS)..
I went to having high BP for 18mths.. well my dystolic was high every time the dr tested it eg 95-98. This continued for a few years and the dr considered hypertension drugs but I guess didnt cause my systolic was fine.
After that.. things changed again. Now my BP was
highly unstable. It is very low at night down to around 62 dystolic (62/86).. it thou can thou go as low as 40 suddenly when stand (but only for a moment, its hard to catch it doing this) .. or it can jump up to 138 when standing (this is my lower reading!! dystolic). 180 systolic/138 dystolic. is my highest readings Ive seen.. I dont take it often so it could be going higher. I ended up being sent to a special eye doctor as I had on scan showed up bulging eye discs.. I think it was probably due to high BP at the time.
I can get the high orthostatic BP issues with or without the POTS at the same time. I also get narrowing of the pulse pressure at times ..Ive seen that several times down as close as 7. (I have all 5 autonomic issues Dr David Bell talks about in ME/CFS people so when I stand.. one never knows what my body will do).