I'm sorry I missed your tag @Judee
and am just catching up on things
I'm sorry you are still feeling so poorly @crypt0cu1t
and wish I had an easy answer re: how long IVIG works for autoimmunity. I feel hopeful in your case b/c you had such a positive response to IVIG in the past. I wanted to ask you, is your current IVIG regime a high enough dose for autoimmunity (for your body weight)?
Also, is it the same brand that helped you in the past, and are you getting adequate pre-meds, and a slow enough infusion speed? When you said "horrible flair", did you mean from the IVIG itself versus that the flare was from your AE and the IVIG simply didn't improve it?