How is it possible?

[Angel Bryan]

How is it possible that a vaccine fucked me so bad?

And how is it possible that science has no explanation and solution for this? The crippling anxiety, feeling like your body is made of cement, the cold and flu feeling...

Nobody really know why it's happening.

It's been a year and a half for me and I am going insane, I was 100% healthy and now my life is a living hell. I am tired of this, this can't be happening to me.

 

[Rufous McKinney]

What vaccine do you think was involved?

I"m sorry things are so difficult. Something neuroimmune is going on and there are some things which might help but it takes time to improve. Unfortunately it often feels like we have to be our own detective and experiment with small fixes to try to feel better. Getting the stress and anxiety to settle down is also really important and you may have at least some success on your own working on that.

Our immune systems seem to be jacked up, and regardless of how much I rest, or how much stress I manage to digest, a sudden loud noise will cause every cell in my body to React Negatively.

I'm in Mexico, also, BTW.

 

[Angel Bryan]

What vaccine do you think was involved?

I"m sorry things are so difficult. Something neuroimmune is going on and there are some things which might help but it takes time to improve. Unfortunately it often feels like we have to be our own detective and experiment with small fixes to try to feel better. Getting the stress and anxiety to settle down is also really important and you may have at least some success on your own working on that.

Our immune systems seem to be jacked up, and regardless of how much I rest, or how much stress I manage to digest, a sudden loud noise will cause every cell in my body to React Negatively.

I'm in Mexico, also, BTW.

I don't think it was involved, I KNOW. It's a vaccine known and documented to cause ME/CFS.

 

[cfs since 1998]

Which vaccine was it?

My immunologist wants me to do a vaccine challenge test for immune deficiency. I'm more than a little hesitant.

 

[Angel Bryan]

Which vaccine was it?

My immunologist wants me to do a vaccine challenge test for immune deficiency. I'm more than a little hesitant.

HPV vaccine. Avoid it like the plague.

 

[Hip]

The crippling anxiety

The NAG anti-anxiety treatment has proved highly effective for many ME/CFS patients.

 

[Wishful]

And how is it possible that science has no explanation and solution for this?

The human body is immensely complicated, with complicated interactions between subsystems. There seem to be new discoveries about how the body functions weekly if not daily. New technologies allow researchers to discover aspects that simply couldn't be discovered before.

It's been a year and a half for me and I am going insane,

That's a difficult period in ME. It's long enough to accept that it's not going to go away soon, but not long enough to really accept that that's your new reality. I think I tried for around ten years to find some solution for this "mysterious neuroimmune disorder" I had. Then I found out about ME, which relieved some of the frustration. I then knew that it was a known disorder, but without actual understanding of it or available treatments. Think of earlier periods, where people developed diseases that were untreatable at that time: tuberculosis, polio, cancers. They too had to suffer until technology developed enough for treatment.


Should the emotional stages of ME be added to the various information packages?

 

[JES]

One and a half years is a time frame that you can improve spontaneously from still. Quite a few people with long COVID have reported improvement or even recovery in this time frame on Reddit. Of course it's not helpful to have unrealistic expectations either, but improvement in this period can occur.

 

[Angel Bryan]

One and a half years is a time frame that you can improve spontaneously from still. Quite a few people with long COVID have reported improvement or even recovery in this time frame on Reddit. Of course it's not helpful to have unrealistic expectations either, but improvement in this period can occur.

I have improved. I am nowhere as bad as I was last year, but some days the symptoms come back. Currently I am feeling heavy and weird again, along with anxiety. This happened after I got stressed a week ago but is not going away.

I can't live life with zero stress tolerance and having to be careful of what I eat everytime.

I am also in constant fear of suddenly getting worse and becoming severe.

 

[Wishful]

I am also in constant fear of suddenly getting worse and becoming severe.

Since that can happen with no known way to avoid it, there's not much point in making yourself worse by stressing over it. There are a few things we do know about and can control, such as exertion and known food sensitivities. Having to be careful of what we eat isn't a limitation only for us; people have other requirements too, such as severe allergies. Having to be careful about foods is simply something we have to accept. It's inconvenient, but insignificant compared to the problems other people have to deal with. I had to spend over a year eating mostly cornstarch pancakes due to type IV sensitivity to most other foods. I've been having to be careful about my diet for 25 years now, so it's just part of life.

Getting accustomed to the limitations forced on us by ME takes time. There's no other option at this time, unless you really don't want to remain alive. We just have to get by, day by day, as best we can, while waiting for science to figure ME out and find a way to treat it.

 

[Viala]

And how is it possible that science has no explanation and solution for this?

Because there is no will to admit that this disease is real and also because it affects more women, so it's easier for them to say it's psychosomatic. It's been like this for decades, but no scientist is that blind.

 

[Hopesprings86]

HPV vaccine. Avoid it like the plague.

Hi Angel,

I've seen a number of people sharing a similar story on the Hormones Matter website. Many have made excellent improvements, may be worth a look if you haven't seen them already. Hope things feel brighter soon.

 

[Angel Bryan]

Hi Angel,

I've seen a number of people sharing a similar story on the Hormones Matter website. Many have made excellent improvements, may be worth a look if you haven't seen them already. Hope things feel brighter soon.

I have checked the website it and it seems that they think the culprit is thiamine deficiency, which is something I haven tested for. Thanks for the heads up.

I feel like an idiot for taking that vaccine and I hate myself for it. I still can't believe it.

 

[Wishful]

I feel like an idiot for taking that vaccine and I hate myself for it. I still can't believe it.

Hindsight is great. You didn't have any way to know what would happen from the vaccine (and you can't know 100% that the vaccine was responsible for triggering ME, since many of us had unknown triggers). When I did decide to get the covid vaccine, I had no way of knowing the risks of worsening my ME or the chance of it reducing my ME symptoms, or the risks of worsening/improving if I didn't get the vaccine and developed covid. My only regret was that I didn't wait a few more weeks for when the government started paying people to get vaccinated.

If you don't have adequate information for making a decision, you shouldn't blame yourself for any consequences of having made the decision you did. If you'd made the decision to not get the vaccine, you might be berating yourself when you got diagnosed with cancer that you might have avoided if you'd gotten the vaccine.

 

[Angel Bryan]

and you can't know 100% that the vaccine was responsible for triggering ME

I know it was it. I was previously healthy without any health issues and without family history, I didn't even knew what ME was.

The only event I had was the vaccine and I started feeling bad two weeks later when the immune response was supposed to happen.

If you'd made the decision to not get the vaccine, you might be berating yourself when you got diagnosed with cancer that you might have avoided if you'd gotten the vaccine.

That's the thing. I am a male and this was a vaccine I didn't needed. I wanted to do life right and have all the vaccines like a fucking dog and that cost me my health.

That's why I hate myself, for being an ignorant and blindly trusting everything I am told. For being an obsessive and always try to fix things that don't need to.

I can't express how sad and angry I am, I feel betrayed by science and by society as a whole.

 

[cfs since 1998]

I know it was it. I was previously healthy without any health issues and without family history, I didn't even knew what ME was.

The only event I had was the vaccine and I started feeling bad two weeks later when the immune response was supposed to happen.

That's the thing. I am a male and this was a vaccine I didn't needed. I wanted to do life right and have all the vaccines like a fucking dog and that cost me my health.

That's why I hate myself, for being an ignorant and blindly trusting everything I am told. For being an obsessive and always try to fix things that don't need to.

I can't express how sad and angry I am, I feel betrayed by science and by society as a whole.

I'm sorry you're going through this Angel. We've all been failed by society. Ever since the UK and US tried to cover up ME/CFS starting in the 80s. Rebranding it with an easily dismissed name, telling us we have false illness beliefs and need CBT/GET, etc. That is not your fault.

 

[Wishful]

I know it was it. I was previously healthy without any health issues and without family history, I didn't even knew what ME was.

That doesn't rule out an unknown cause that just happened to coincide with your vaccination. I didn't have health issues or knew what ME was either. I just ate some oranges and got flu-like symptoms two days later, which vanished the following day. That was my first awareness of what would become ME symptoms. Did the oranges cause my ME? I did get a tetanus booster (turned out to be unnecessary once I researched it) some weeks or months before that. Did that vaccination cause my ME? Maybe, but I don't know for sure. It could have been any number of unnoticed factors. We're exposed to large numbers of new microbial strains daily, and show no signs of them, but they could have an effect that triggers ME. It's easy to assume the cause of something, but coincidences do happen, so it could have been some other factor instead.

The point is, you didn't make a decision knowing there was a risk of developing ME. I didn't either. I'm not kicking myself for buying some oranges. I bought them partly because fruit is supposed to be good for our health, and most of the time it is. Likewise, most of the time vaccines are beneficial for us. I don't have any data on the risk of covid vaccines causing ME, but the risks of developing LC or even dying from covid are significant.

If you're interested, you can start a poll about "Did you get an HPV vaccination shortly before developing ME?"

 

[Rufous McKinney]

There may be some information online about Vaccine Injury, which is a real thing I believe that is sometimes acknowledged.

 

[Angel Bryan]

If you're interested, you can start a poll about "Did you get an HPV vaccination shortly before developing ME?"

It's not necessary, the vaccine is documented to cause MECFS and we even have posts talking about it on this forum.

That's why I feel betrayed, because it's known since more than a decade yet nobody warned me about it and it is still in the market

Again, I don't get how this is possible and nobody bats an eye.

 

[Angel Bryan]

There may be some information online about Vaccine Injury, which is a real thing I believe that is sometimes acknowledged.

There is and basically it's that nobody knows why it happens and there is nothing to do.

Same case as classic ME/CFS.