I have been stuck in bed for almost a week when I had surgery years ago. In my experience, it was nothing compared to the OI/POTS I developed several years later. You will lose a little muscle while laying in bed for a week, but it didn't cause me any sensory or other issues, so my experience was very different.
You were almost diagnosed with ALS and have HSV in the brain? I don't know what to say to that, but ALS doesn't have much in common with ME/CFS, those are two quite different diseases and symptoms are very different as well.
I understand you were very ill, but the symptoms you listed do not fit well with what the average ME/CFS patient experiences. Hearing voices, twitching everywhere, tremors, slurring of speech, losing motor function and swallowing are not common ME/CFS symptoms. What I'm getting at is, since your disease is let's say at the very least atypical for an ME/CFS patient, perhaps you shouldn't assume what worked for you to get better can be extrapolated onto the majority of patients. Most of us have gone through attempts to exercise/rehabilitate a million times.