Sorry to post again asking questions but I am trying to work things out before I next speak to my GP so I can go armed.
I have had it suggested to me I may have POTS by a few members. I actually suspected it last year but a friend of mine said you'd have to have a heart rate over 120 on standing to have POTS. Well in recent months i am feeling worse. I have chronic fatigue for over 18 months and an underactive thyroid but that's now in range. I have had cfs suggested by 2 GP's but no formal diagnosis. In recent months my symptoms feel worse and this is how I daily feel and was wondeing if it could be POTS, I have read the symptoms but I am not sure it fits.
Daily fatigue, some days a 5/10 if I am very lucky but a usual day is 7/10, 10 being a crash.
Heavy weak thighs often, usually by the end of the day or if in a crash. The legs feel weak, heavy and sometimes thighs feel they're burning.
I can't stand for long periods, I know this sounds gross but i used to stand in the mirror squeezing my blackheads haha and I'd be fine but the last 6 months if I stand there doing that I have to keep sitting down as I feel I am falling through the floor and I have to sit to catch my breath as my heart races.
I can't stand for long periods, sometimes standing talking to hubby I feel myself swaying, falling through the floor feeling, weak thighs and sometimes feels like blood rushes to my feet and the feet feel cold.
I can't stand or walk around for long I feel exhausted, weak and breathless.
I can't go to the park with the kids for long and afterwards my crash weak legs hit and I feel poorly>
Crash days my thighs feel so weak but like lead and I have low BP and can't even walk to the bathroom on days like that I feel so weak and faint.
Sometimes after a meal I feel so full I feel breathless, heart races and I can't stand up for long. So weird.
I haven't done any tests on my heart rate but I downloaded the stand test app on Apple today that I will do this afternoon if I can stand that long. I can't do the Tilt test, I am suffering badly with agoraphobia this last year being this unwell and my GP not taking me seriously and just saying it was mood or anxiety was so unfair and he left me ill. I ended up housebound and I am now struggling socially and getting out but it's all to do with how unwell I feel.
I have had so many bloods and my GP hasn't given me answers as to why I feel like I do and why I crash after any exertion or emotional upset. I crash badly after anything emotional/upsetting or too much housework. It's getting me down, I've had CFS suggested twice but nothing offficial diagnosed but i am sure it's what I have but are the symptoms above more POTS? I don't get pain or swollen glands so I worry it can't be CFS.
Thank you and I am sorry again to post.
Julie
I have had it suggested to me I may have POTS by a few members. I actually suspected it last year but a friend of mine said you'd have to have a heart rate over 120 on standing to have POTS. Well in recent months i am feeling worse. I have chronic fatigue for over 18 months and an underactive thyroid but that's now in range. I have had cfs suggested by 2 GP's but no formal diagnosis. In recent months my symptoms feel worse and this is how I daily feel and was wondeing if it could be POTS, I have read the symptoms but I am not sure it fits.
Daily fatigue, some days a 5/10 if I am very lucky but a usual day is 7/10, 10 being a crash.
Heavy weak thighs often, usually by the end of the day or if in a crash. The legs feel weak, heavy and sometimes thighs feel they're burning.
I can't stand for long periods, I know this sounds gross but i used to stand in the mirror squeezing my blackheads haha and I'd be fine but the last 6 months if I stand there doing that I have to keep sitting down as I feel I am falling through the floor and I have to sit to catch my breath as my heart races.
I can't stand for long periods, sometimes standing talking to hubby I feel myself swaying, falling through the floor feeling, weak thighs and sometimes feels like blood rushes to my feet and the feet feel cold.
I can't stand or walk around for long I feel exhausted, weak and breathless.
I can't go to the park with the kids for long and afterwards my crash weak legs hit and I feel poorly>
Crash days my thighs feel so weak but like lead and I have low BP and can't even walk to the bathroom on days like that I feel so weak and faint.
Sometimes after a meal I feel so full I feel breathless, heart races and I can't stand up for long. So weird.
I haven't done any tests on my heart rate but I downloaded the stand test app on Apple today that I will do this afternoon if I can stand that long. I can't do the Tilt test, I am suffering badly with agoraphobia this last year being this unwell and my GP not taking me seriously and just saying it was mood or anxiety was so unfair and he left me ill. I ended up housebound and I am now struggling socially and getting out but it's all to do with how unwell I feel.
I have had so many bloods and my GP hasn't given me answers as to why I feel like I do and why I crash after any exertion or emotional upset. I crash badly after anything emotional/upsetting or too much housework. It's getting me down, I've had CFS suggested twice but nothing offficial diagnosed but i am sure it's what I have but are the symptoms above more POTS? I don't get pain or swollen glands so I worry it can't be CFS.
Thank you and I am sorry again to post.
Julie