Hi all, sorry if this is the wrong place to post.
I am going to try the one last Doctor in my local NHS health practise to see if i can get anywhere with him.
Some of you may already know that i have had a lot of trouble with unsympathetic doctors and this one ois my last chance. I dont expect help with resolving my M.E, but i have had no support at all from my GP's practice since i was diagnosed a year ago (have been ill for much longer though)
I now need support with things like getting a blue badge, maybe a wheelchair for going out sometimes etc. My current GP has never even asked me what my level of disability is so he doesnt know that i have been mainly housebound for the past year.
I was recently also refused antivirals for suspected swine flu as he says i am not immunecompromised like a cancer or diabetic patient. This was the final straw for me as we are considered high risk for recieving the vaccine (i didnt have it) as we have a neurological disease. I am also high risk as i have Asthma and had pneumonia and pleurisy followed by a 9 month infection in my lungs less than 2 years ago. I also have a fibrotic band in my lung (as shown on CT scan)
My doctor has read the report from Dr.Myhill whcih outlines my mitochondrial problems and severe oxidative stress and high cell free DNA results but still treats me like i am just a nutcase.
So, I am trying the last one i havent yet seen and if i get nowhere with him then its complaint time.
My question is where can i find really good, brief and succint info on M.E for this doctor which also shows it has an immune abnormality profile? I know there is tons of research to back up what i say, but i am to ill to trawl it and collate it all for him.
If it is U.K centric then so much the better and anything from the NHS would be marvellous
I just want to present him with maybe 1 or 2 pages at the most to back up my claim that it is a real illness and that i need to be taken seriously and given help. I know the NICE guidelines are really awful, but even they say i should have a care and management plan - which has never been mentioned let alone offered.
Thanks. Justyx
I am going to try the one last Doctor in my local NHS health practise to see if i can get anywhere with him.
Some of you may already know that i have had a lot of trouble with unsympathetic doctors and this one ois my last chance. I dont expect help with resolving my M.E, but i have had no support at all from my GP's practice since i was diagnosed a year ago (have been ill for much longer though)
I now need support with things like getting a blue badge, maybe a wheelchair for going out sometimes etc. My current GP has never even asked me what my level of disability is so he doesnt know that i have been mainly housebound for the past year.
I was recently also refused antivirals for suspected swine flu as he says i am not immunecompromised like a cancer or diabetic patient. This was the final straw for me as we are considered high risk for recieving the vaccine (i didnt have it) as we have a neurological disease. I am also high risk as i have Asthma and had pneumonia and pleurisy followed by a 9 month infection in my lungs less than 2 years ago. I also have a fibrotic band in my lung (as shown on CT scan)
My doctor has read the report from Dr.Myhill whcih outlines my mitochondrial problems and severe oxidative stress and high cell free DNA results but still treats me like i am just a nutcase.
So, I am trying the last one i havent yet seen and if i get nowhere with him then its complaint time.
My question is where can i find really good, brief and succint info on M.E for this doctor which also shows it has an immune abnormality profile? I know there is tons of research to back up what i say, but i am to ill to trawl it and collate it all for him.
If it is U.K centric then so much the better and anything from the NHS would be marvellous
I just want to present him with maybe 1 or 2 pages at the most to back up my claim that it is a real illness and that i need to be taken seriously and given help. I know the NICE guidelines are really awful, but even they say i should have a care and management plan - which has never been mentioned let alone offered.
Thanks. Justyx