How are your headaches?

[waitingyet]

I always have headaches since the onset of cfs, or I should say since the first day of epstein barr. In mi case it is like to have a "plaque or similar" on my forehead. Also I have "points" where the headaches are worse, like the sides of forehead and they are like pulsations sometimes
How is your headache?

 

[Rufous McKinney]

Mine feels likes its focused in brain stem

 

[Wishful]

I rarely get headaches, and the frequency and type didn't change with the onset of ME. I think ME affects brain cell function in regions unique to the individual, so any sort of neurological disorder seems possible from ME, including headaches. Likewise, ME can affect the brain cells or nerve cells involved with gut function, resulting in a similar wide range of individualistic symptoms.

That brings up a related question: do PWME report a variety of heart dysfunction that might be attributable to ME? It seems logical that there would be. Eyes, ears, nose, and tongue show those sorts of variable dysfunctions; are there any other body parts with significant neurological interaction that show or don't show this effect?

 

[hapl808]

My headaches usually feel like pressure behind the eyes, plus back of the neck and temples. I also occasionally get migraines (visual blurring, nausea, etc). Doesn't happen that often, but can be triggered with PEM. I always have a low level headache, though - I don't think it's fully gone away at least in the last 10 years or so (since I declined).

 

[waitingyet]

My headaches usually feel like pressure behind the eyes, plus back of the neck and temples. I also occasionally get migraines (visual blurring, nausea, etc). Doesn't happen that often, but can be triggered with PEM. I always have a low level headache, though - I don't think it's fully gone away at least in the last 10 years or so (since I declined).

So similar to my case, and your symptoms began with ebv the same like me