Hospital protocol

[concepcion]

Does anyone know of a good (formal) protocol which could be used as a basis for either: 1) educating a hospital on how to deal with an ME/CFS patient; or 2) to set up a specialised ME/CFS ward?

 

[Denise]

Does anyone know of a good (formal) protocol which could be used as a basis for either: 1) educating a hospital on how to deal with an ME/CFS patient; or 2) to set up a specialised ME/CFS ward?

Some of this may depend on the country you are considering this for.

 

[concepcion]

I guess what I'm looking for is something authoritative to take to hospital staff / administrators / ministry of health to lobby for the protocol to be used with a patient, or, even better, to lobby for a specialised ward.

 

[Denise]

The links here: http://www.njmecfsa.org/anesthesia/ are useful but are only about anesthesia.

My general thought is that hospitals are not a great place to have to be - whether one has ME or anything else.
I don't know of a protocol but I hope others have suggestions.
Sorry I am not more help.

 

[Sushi]

Does anyone know of a good (formal) protocol which could be used as a basis for either: 1) educating a hospital on how to deal with an ME/CFS patient; or 2) to set up a specialised ME/CFS ward?

If you are in the US you might want to read this post and contact the author. They were talking about a "Center for Excellence"

and a hospital agreeing to do a series of CME courses for their doctors and nurses on ME/CFS, fibromyalgia and Lyme.

Sushi

 

[concepcion]

Thanks Sushi.

 

[concepcion]

The links here: http://www.njmecfsa.org/anesthesia/ are useful but are only about anesthesia.

My general thought is that hospitals are not a great place to have to be - whether one has ME or anything else.
I don't know of a protocol but I hope others have suggestions.
Sorry I am not more help.

Thanks Denise. That's actually a good start.

 

[WillowJ]

I believe they have also done the CME in Michigan.

try pandoraorg.net to contact Pandora

Some of the regional orgs also work with physician education, such as the New Jersey org mentioned.

Ryan Pryor 's org is also working on physician education but I think solely via internships (so maybe not predictably helpful for a given hospitalization, but should help over time)