High Dose oxygen therapy. Experiences?

[justy]

Hi, i have just been told that there is a centre for people with MS and other disorders near me that delivers high dose oxygen therapy - starting with 6 one hour sessions a week. It seems to be set up as a charity and i dont think it will be expensive (if i have to pay at all)

I was recommended by a friend of a friend who has M.E and says it has really helped her. I also have had probelms with Anemia and severely low ferritin for years and i have a lung disorder - so i figured i could be pretty low in oxygen.
Are there any possible negative affects from this?
Has anyone been helped by it?
Thanks, Justy.

 

[SickOfSickness]

Great opportunity. I hope you try it! Some people pay a lot for that. Dr Jamie says lots of patients are seeing improvement on oxygen. Anywhere from a little improvement to a lot.

 

[Sushi]

Hi, i have just been told that there is a centre for people with MS and other disorders near me that delivers high dose oxygen therapy - starting with 6 one hour sessions a week. It seems to be set up as a charity and i dont think it will be expensive (if i have to pay at all)

Are there any possible negative affects from this?
Has anyone been helped by it?
Thanks, Justy.

You might want to check in with Dr. Jamie Deckoff-Jones who has a lot of experience giving oxygen to ME/CFS patients. She has spoken often about the way she delivers t and I think she finds that it does matter--the flow and percentage, etc.--for ME/CFS patients.

Her blog is here: http://www.x-rx.net/blog/ I think a couple of blogs back the mother of one of her patients described the oxygen treatment, or you could leave a comment for Jamie in the comments section--or PM her on this forum.

Best wishes with this opportunity,
Sushi

 

[mobyjoby]

wow - is this something that is often helpful? There is a centre within 10 mins drive from me that is a charity too.

 

[Sparrow]

Has anyone heard anything about Dr. Cheney's oxygen toxicity theory? I know he had thought for at least some patients oxygen seemed to be a negative thing, but I haven't looked into it in detail. On the other side, I know the Australian guide for ME/CFS suggested oxygen to help us with recovery from airplane rides, surgery, etc.

I would say give it a try. If it seems to make you feel better, great. If it makes you feel worse, maybe don't do it again.

 

[*GG*]

Hi, i have just been told that there is a centre for people with MS and other disorders near me that delivers high dose oxygen therapy - starting with 6 one hour sessions a week. It seems to be set up as a charity and i dont think it will be expensive (if i have to pay at all)

I was recommended by a friend of a friend who has M.E and says it has really helped her. I also have had probelms with Anemia and severely low ferritin for years and i have a lung disorder - so i figured i could be pretty low in oxygen.

Are there any possible negative affects from this?

Has anyone been helped by it?
Thanks, Justy.

I have been using a CPAP with oxygen (2 Liters/min) for over 2 years now. I have also made a lot of other changes, lifestyle and supps/meds, so cannot say it was definetly the oxygen. But thought I would pass along my experience.

GG

 

[justy]

Thanks for all the replies. I am watinmg for them to e mail me back with further details-one problem i have is getting there - too far for mt to drive and every day is a big ask for my very limited friend pool.

I had thought that Dr Deckoff jones was using hyperbaric oxygen therapy and presumed that was different to HDOT. But thanks for the reminder - perhaps i will pop by hjer forum and send her a mail.

GG - do you think you could say a bit more about your experience? where you doing this at home or in a centre? Do you feel it has helpoed alongside the other stuff you have been doing?
Thanks again, Justy.

 

[BEG]

Justy, I am hoping this helps you. Dr. Lapp let me try oxygen a long time ago. I used it twenty minutes a day. I can say that the help I found was that it relieved me of all headaches, which was no small thing in my case. I remember then oxygen fell out of favor with Cheney being the most vocal. So I gave it up.

Recently, and in fact today, I am having an oxygen generator delivered, and will be using oxygen all night. During the course of treatment by a cardiologist, he ordered a sleep study. It showed low oxygen consumption, bradycardia, snoring, but no sleep apnea. Medicare required that I be tested again -- with a pulse oxometry. The results revealed an oxygen consumption of 88% for 11 minutes which qualifies me for Medicare paid oxygen. I have no idea what to expect.

Sushi, thanks for the link. Justy, good luck.

 

[globalpilot]

My doctor recommended this for me over a year ago and I have put it off until now. It will be using a mask and tank, not in a hyperbaric chamber.

I have severe blaoting/burping and breath tests tested negative for hydrogen and methane. So we think it must be carbon dioxide. We're thinking in theory, the carbon dioxide is making me spacy and tired and the oxygen may displace it. I've heard of pilots getting symptoms like mine when they get hypoxic.

Long way of saying I will be trying it too and will report back. Good luck with it!

Hi, i have just been told that there is a centre for people with MS and other disorders near me that delivers high dose oxygen therapy - starting with 6 one hour sessions a week. It seems to be set up as a charity and i dont think it will be expensive (if i have to pay at all)

I was recommended by a friend of a friend who has M.E and says it has really helped her. I also have had probelms with Anemia and severely low ferritin for years and i have a lung disorder - so i figured i could be pretty low in oxygen.
Are there any possible negative affects from this?
Has anyone been helped by it?
Thanks, Justy.

 

[aquariusgirl]

I think all of this stuff is starting to come together for me. I consulted David Berg last yer (ex director of Hemex). He indicated I was extremely hypoxic because my body was furiously producing fibrin due to infections. He said he saw I had had this problem for years based on the labwork I sent him.
For the record, it's not classic hypercoagulation.
Then I started taking B2 & manganese recently to treat what appear to be iron transport/heme regulations problems. Bada bing .. It feels like more oxygen is getting thru.
I am also taking 40mg of lumbrokinase plus herbal antivirals for the fibrin/ISAC problem.
I hope to get some professional input on this part of the problem soon. David just identified teh problem, but he's not a physician, so he doesn't give medical advice.
I'm looking into a home oxygen concentrator & mild HBOT using Deckoff Jones recommendations.

 

[Dreambirdie]

I'm looking into a home oxygen concentrator & mild HBOT using Deckoff Jones recommendations.

When you figure out how it's done with the home concentrator, please post! Thanks

 

[hoMEy]

i have recently bought a Hyla "water air purifier"; if you add a tablespoon of seasalt to the water it gives off massive amounts of negative oxygen ions. i've tried ionizers but this is another level and 100% au naturelle and gives air like at the seaside. i was very surprised to get die off symptoms. i have noticed that if i'm outdoors for a long period i feel a benefit; this is like that. easily missed and cheap. atb

http://www.hyla.org.uk/index.php?option=com_content&view=article&id=3&Itemid=7

i personally don't think the purification occurs by way of the air being sucked through water but rather the sprayed salt water releases vast amounts of oxygen, similar to waves at the seaside and also waterfalls

 

[justy]

I suppose that could explain why i always feel better at the beach - even on a cold damp day.

I have now found out that the treatment offered at the centre near me is one and a half hhours a day/ 5 days a week for a month followed by one session a week indefinately. They are only going to charge 8.00 a session, so the months treatment is only 160. But (of course there is always a but) the centre is 12 miles from my home - too far for me to drive alone - especially if i have an initial worsening of symptoms and fatigue (which they say is normal) there is no public transport - i probably couldnt manage it anyway, and the taxi there and back every day is going to be about 30 per day at least. - making the treament nearly 200 per week and i cant afford that. If it was just once a week i could ask a friend - but every day is way too much to ask, and i dont have enough friends to share it out.

Don't know what to do now.
This is an interesting study with Kenny De Merlier about the use of HBOT for CFS - can only find the abstract though

http://www.prohealth.com/library/showarticle.cfm?libid=10055

All the best, Justy.

 

[BEG]

When you figure out how it's done with the home concentrator, please post! Thanks

Check again in Jaime's blog pertaining to oxygen, especially the question and answer section. Readers have asked her the same question.

When only a concentrator is available (not HBOT) she pulses the oxygen. You'll have to see her blog for more technical detail. It is extremely informative.

 

[anniekim]

I suppose that could explain why i always feel better at the beach - even on a cold damp day.

I have now found out that the treatment offered at the centre near me is one and a half hhours a day/ 5 days a week for a month followed by one session a week indefinately. They are only going to charge 8.00 a session, so the months treatment is only 160. But (of course there is always a but) the centre is 12 miles from my home - too far for me to drive alone - especially if i have an initial worsening of symptoms and fatigue (which they say is normal) there is no public transport - i probably couldnt manage it anyway, and the taxi there and back every day is going to be about 30 per day at least. - making the treament nearly 200 per week and i cant afford that. If it was just once a week i could ask a friend - but every day is way too much to ask, and i dont have enough friends to share it out.

Don't know what to do now.
This is an interesting study with Kenny De Merlier about the use of HBOT for CFS - can only find the abstract though

http://www.prohealth.com/library/showarticle.cfm?libid=10055

All the best, Justy.

Jamie deck off jones in her recent blogs about oxygen suggests not doing the intense course of HBOT sessions that people with ms do, but perhaps start with one a week. She says I think the initial intense sessions favoured by people with ms would be too much for people with m.e and could cause bad herx

 

[Athene]

I have been doing intense oxygen therapy for 18 months.

I have a tankof oxygen at home beside an exercise bike and I breathe oxygen at 10 litres/minute for 20 minutes, while cycling slowly - the movement ensures the oxygen penetrates into all the cells. It is fantastic, I feel much better when I do it. I have had periods when I have lapsed, and then felt myself declining in energy and general health.

I also take a brief puff of oxygen when I get brain fog - which it usually clears up miraculously - and it also often can cure a headache in a matter of minutes.

 

[baccarat]

I did IV ozone therapy for while as I was told it might help with CFS. I was told oxygen is helpful because it kills viruses and bacteria.
Later I gave it up when another doctor told me that it might not be so good for aerobic bacteria which usually infect respiratory tracts. In fact I had a history of recurring sinusitis and bronchitis and in fact it didn't help with those, and may have made them worse.

 

[justy]

Thanks for the info - i had wondered if every day would be too much for us. I might go over to Dr Jamies blog and ask her about it a bit more.

Baccarat - i am also concerned about wether it is good for me considering my lung problems. I suppose i'm going to have to do the rounds of my GP, lung consultant and M.E specialist to ask if they think it would be ok. I still havent heard much back from the centre about the treatment - they are very hard to get hold off and they havent made any suggestions about if i need to see a doctor first.

Ive also just worked out that the earliest i could do a months intensive therapy would be september, due to other commitments. You know how it is when you cant afford to be out of action and feeling worse because of something you have had planned for a long time.
All the best, Justy.

 

[justy]

Jamie deck off jones in her recent blogs about oxygen suggests not doing the intense course of HBOT sessions that people with ms do, but perhaps start with one a week. She says I think the initial intense sessions favoured by people with ms would be too much for people with m.e and could cause bad herx

Hi Anniekim - do you have a link to save me trawling through all her blogs looking for it?
Thanks , Justy.

 

[garcia]

Hi Anniekim - do you have a link to save me trawling through all her blogs looking for it?
Thanks , Justy.

Took me a while to find but here is Dr JDJ's quote anniekim was referring to I believe:

http://www.x-rx.net/blog/2012/04/oxygen-primer.html/comment-page-1#comment-14013

For ME/CFS patients, the energy expended on getting the treatment is always an issue. My guess is that experiences with HBOT in the UK would be better with a home concentrator as well. The UK is blessed with almost free HBOT centers all over the country, thanks to the work of a very special doctor, Philip James. They will treat all neurological indications, including ME. For MS, they usually start with lots of treatments for a few weeks, then go to maintenance. For us, Id probably try a concentrator first (like I did with K in the guest blog a few back). If clearly helpful, and once the patients body is used to some oxygen, HBOT might be even better. If so, maybe once per week? Start low, go slow is usually a good way to go for us.