Hi there... I wasn't sure where to post this and I have never had a diagnosis for ME/CFS, I have had quite a few doctors mention "you maybe have CFS as that would explain why you feel how you do etc". But never had a doctor follow this up as I have had anxiety so anxiety is always the final diagnosis (even though I am not anxious anymore)
I have had blood tests, all came back "ok" apart from my vitamin b12 being high... I also had a high white count but after a follow up blood test the white count returned to normal (??) ...... I have never found out exact numbers etc as I have a lot of memory problems and always forget to ask. The b12 level being high was never followed up either (???)
My symptoms are and have been getting progressively worse over the last 3 years:
Difficulty walking - My legs get EXTREMELY weak, heavy and tired and they drag, I can only walk a max of 100 metres, then I have to sit and rest and when the little bit of energy returns I can manage another 100 metres - and then repeat this over and over each time getting harder and harder
Everything I do every day is the same - tackle a little - too weak & tired to carry on - when recovered go again - over and over again.
I also get very unbalanced & dizzy and so much more but memory is bad so cant list all here.
I get numb patches in my legs and tingly and a lot of muscle spasms in my legs.
I thought it could be MS but my doctor said I didn't have MS without checking me over at all!!!???!!!
I am just sooooooooooooo fed up feeling so weak and heavy and tired and was wondering what tests I can ask for to explain what is happening to me?
My vitamin D is ok, had that checked too and I have sent off a blood sample to York Tests to see if any food allergies are causing this - only did this yesterday so no results yet!
I also tried some iron tablets a few weeks ago as I though maybe my iron was low but got very dizzy and had to stop!
Not sure I am posting this in the right place, I guess I am just seeking an explanation and wondering if vitamin b12 has anything to do with all this as nothing else showed up in my blood results???
Was very freaked out when reading that high b12 can mean cancer but my doctor tells me I don't have leukemia.
xxx
I have had blood tests, all came back "ok" apart from my vitamin b12 being high... I also had a high white count but after a follow up blood test the white count returned to normal (??) ...... I have never found out exact numbers etc as I have a lot of memory problems and always forget to ask. The b12 level being high was never followed up either (???)
My symptoms are and have been getting progressively worse over the last 3 years:
Difficulty walking - My legs get EXTREMELY weak, heavy and tired and they drag, I can only walk a max of 100 metres, then I have to sit and rest and when the little bit of energy returns I can manage another 100 metres - and then repeat this over and over each time getting harder and harder
Everything I do every day is the same - tackle a little - too weak & tired to carry on - when recovered go again - over and over again.
I also get very unbalanced & dizzy and so much more but memory is bad so cant list all here.
I get numb patches in my legs and tingly and a lot of muscle spasms in my legs.
I thought it could be MS but my doctor said I didn't have MS without checking me over at all!!!???!!!
I am just sooooooooooooo fed up feeling so weak and heavy and tired and was wondering what tests I can ask for to explain what is happening to me?
My vitamin D is ok, had that checked too and I have sent off a blood sample to York Tests to see if any food allergies are causing this - only did this yesterday so no results yet!
I also tried some iron tablets a few weeks ago as I though maybe my iron was low but got very dizzy and had to stop!
Not sure I am posting this in the right place, I guess I am just seeking an explanation and wondering if vitamin b12 has anything to do with all this as nothing else showed up in my blood results???
Was very freaked out when reading that high b12 can mean cancer but my doctor tells me I don't have leukemia.
xxx