Hi,
I was wondering if I could get some advice on MCAS - primarily if I could be suffering from it?
I’m 48 years old male and was diagnosed with ME/CFS in 2016, I also suffered from a similar illness back in 2006. That time it lasted approximately 12 months then miraculously disappeared only to return in early 2016.
I’ve had quite a few medical investigations - so far nothing has come up apart from high cholesterol and some fat in my liver. I also had some raised liver enzymes which I was told related to alcohol even though I hardly drink.
My illness is quite sporadic. I have periods of good health then seem to suffer crashes and end up extremely sick and unwell.
My symptoms are quite varied but here is a rundown >
Primary symptoms >>>>>>>>>>>>>>>>>>>>>>>>
Extreme tiredness - fatigue
Nausea - constantly feeling sick
Diarrhoea – often during periods of illness and can happen soon after eating
Brain Fog - at times I find it hard to concentrate on anything, reading a page of text would be a struggle!
Other symptoms >>>>>>>>>>>>>>>>>>>>>>>>
Night disturbances - although I fall to sleep relatively easily I generally wake around 2am feeling hot I then find it hard to get back to sleep
Pins and needles - often tingling in legs or facial spasms
Increased hunger / thirst - I often seem to crave food as if my blood sugar is low (it isn’t!)
Alcohol intolerance - I seem to have developed an intolerance to alcohol. I get drunk extremely easily and alcohol makes my night disturbances much worse
Sinusitis- I sometimes have attacks of sneezing and a runny nose, I also have serious problems when the tree pollen comes out
Headaches - I get tension headaches quite often during the periods that I’m feeling sick
Hoarse voice - I’ve noticed that occasionally my voice is quite hoarse although I don’t seem to have a sore throat or throat infection – I wonder if this is related to excess stomach acid?
Mood changes - I seem to be more temperamental than usual, sometimes feel very anxious, sometimes feel depressed
Hypersalivation – this can happen from time to time, it’s very odd
Rash – I’m not sure if this is relevant or not but I have permanent rash on the back of my ankle (it’s been there for years) its sometimes quite inflamed and itchy. I also sometimes get a bit of flushing around my upper torso and face after eating and always after drinking alcohol.
>>>>>>>>>>>>>>>>>>>>>>>>
I only came across Mastocytosis a week or so ago and I’m not sure if it’s worth going to see someone about it?
I’d probably have to go private (as my Dr is completely useless) I’m happy to do that but only if it’s a reasonable possibility.
Any advice would be greatly appreciated!
Thanks
Rich
I was wondering if I could get some advice on MCAS - primarily if I could be suffering from it?
I’m 48 years old male and was diagnosed with ME/CFS in 2016, I also suffered from a similar illness back in 2006. That time it lasted approximately 12 months then miraculously disappeared only to return in early 2016.
I’ve had quite a few medical investigations - so far nothing has come up apart from high cholesterol and some fat in my liver. I also had some raised liver enzymes which I was told related to alcohol even though I hardly drink.
My illness is quite sporadic. I have periods of good health then seem to suffer crashes and end up extremely sick and unwell.
My symptoms are quite varied but here is a rundown >
Primary symptoms >>>>>>>>>>>>>>>>>>>>>>>>
Extreme tiredness - fatigue
Nausea - constantly feeling sick
Diarrhoea – often during periods of illness and can happen soon after eating
Brain Fog - at times I find it hard to concentrate on anything, reading a page of text would be a struggle!
Other symptoms >>>>>>>>>>>>>>>>>>>>>>>>
Night disturbances - although I fall to sleep relatively easily I generally wake around 2am feeling hot I then find it hard to get back to sleep
Pins and needles - often tingling in legs or facial spasms
Increased hunger / thirst - I often seem to crave food as if my blood sugar is low (it isn’t!)
Alcohol intolerance - I seem to have developed an intolerance to alcohol. I get drunk extremely easily and alcohol makes my night disturbances much worse
Sinusitis- I sometimes have attacks of sneezing and a runny nose, I also have serious problems when the tree pollen comes out
Headaches - I get tension headaches quite often during the periods that I’m feeling sick
Hoarse voice - I’ve noticed that occasionally my voice is quite hoarse although I don’t seem to have a sore throat or throat infection – I wonder if this is related to excess stomach acid?
Mood changes - I seem to be more temperamental than usual, sometimes feel very anxious, sometimes feel depressed
Hypersalivation – this can happen from time to time, it’s very odd
Rash – I’m not sure if this is relevant or not but I have permanent rash on the back of my ankle (it’s been there for years) its sometimes quite inflamed and itchy. I also sometimes get a bit of flushing around my upper torso and face after eating and always after drinking alcohol.
>>>>>>>>>>>>>>>>>>>>>>>>
I only came across Mastocytosis a week or so ago and I’m not sure if it’s worth going to see someone about it?
I’d probably have to go private (as my Dr is completely useless) I’m happy to do that but only if it’s a reasonable possibility.
Any advice would be greatly appreciated!
Thanks
Rich